Acknowledgements

The course has drawn on expertise from many different people, including people with personal experience of dementia, and clinicians, scientists, researchers, academics, writers, artists and arts practitioners, funders, professionals working in care settings, museum staff, charities and community organisations, and government bodies.

The course was put together by Janette Junghaus during the Created Out of Mind residency at the Wellcome Collection in her role as Project Coordinator & Research Assistant at the Dementia Research Centre, UCL Institute of Neurology. This project has been funded by the Wellcome Trust’s Hub Award. We are hugely grateful to Janette and all contributors for the work that time that has been put in to realising this course.

Week 1

Video content

Prof Sebastian Crutch – Director, Created Out of Mind, and Neuropsychologist, Dementia
Research Centre, UCL Institute of Neurology
Dr Tony Woods – Hub Partnership Manager, Wellcome Trust
Patricia Utermohlen – wife of the late William Utermohlen
Philip Ball – Science Writer
Prof Nick Fox – Consultant Neurologist & Director, Dementia Research Centre, UCL Institute of Neurology
Julian West – Musician & Head of Open Academy, Royal Academy of Arts
Charlie Harrison – Artist
Emma Harding – PhD Researcher, Dementia Research Centre, UCL Institute of Neurology
Barbara Stephens – CEO, Dementia Pathfinder
Susanna Howard – Founder & Artistic Director, Living Words
Caroline D’Souza – Creative Arts Development Manager, Jewish Care
Susan Shaw – Senior Carer, Hawkinge House
Alice Thwaite – Co-director, Equal Arts
Keith and Rose – affected by dementia
Lord Howarth of Newport CBE – Co-chair of the All Party Parliamentary Group on Arts, Health and Wellbeing
Arti Prashar – Artistic Director & CEO, Spare Tyre

Article and interview content

Janette Junghaus – Research Assistant, Dementia Research Centre, UCL Institute of Neurology
Shazea Quraishi – Poet and Living Words artist
Susanna Howard – Founder & Artistic Director, Living Words

Week 2

Video content

Prof Paul Camic – Professor of Psychology & Public Health, Salomons Centre for Applied Psychology, Canterbury Christ Church University
Kate Sergeant – Services, Manager, Alzheimer’s Society Kent and Medway
Isabelle Adams – Music Leader, Singing With Friends Choir, Wigmore Hall
Kate and John – affected by dementia
Laura Dickens – Trainee Clinical Psychologist, Canterbury Christ Church University
Sarah Bentley & Elissavet Ntoulia – Visitor Experience Assistants, Wellcome Collection
Elizabeth Ann – affected by dementia
Damian Hebron – Head of Arts, Cambridge University Hospital, and Director, London Arts in Health Forum
Janice Galloway – Living Well Team Co-ordinator, Jewish Care
John – affected by dementia

Article and interview content

Hermione Jones – Programme Manager, Music for Life
Susanna Howard – Founder & Artistic Director, Living Words

Week 3

Video content

Julian West – Musician & Head of Open Academy, Royal Academy of Arts
Elizabeth Ann – affected by dementia
Dr Hannah Zeilig – Senior Research Fellow, London College of Fashion, University of the Arts London
Prof Julian Hughes – RICE Professor of Old Age Psychiatry, University of Bristol
David and Rachel – affected by dementia
Arti Prashar – Artistic Director and CEO, Spare Tyre
Timothy Cape – Musician & Educator
Michele and Carlos – affected by dementia
Clare Whistler – Artist
Barbara Stephens – CEO, Dementia Pathfinder
Dr Andrea Capstick – Senior Lecturer in Dementia Studies, University of Bradford
Maria Parsons – Chief Executive, Creative Dementia Arts Network
Susanna Howard – Founder & Artistic Director, Living Words
Elly Wilson Wickenden – Deputy Director, Creative Arts East
Damian Hebron – Head of Arts, Cambridge University Hospital, and Director, London Arts in Health Forum
David Cutler – Director, The Baring Foundation

Article and interview content

Maria Parsons – Chief Executive, Creative Dementia Arts Network

Week 4

Video content

Kailey Nolan – Communications Manager, Created Out of Mind
Dr Hannah Zeilig – Senior Research Fellow, London College of Fashion, University of the Arts London
Urvashi and Bhupendra – affected by dementia
Dr Nicholas Firth – Postdoctoral Research Associate, UCL
Fergus Walsh – Medical Correspondent, BBC
Janneke van Leeuwen – Founder, The Thinking Eye and PhD Researcher, UCL
Prof Paul Camic – Professor of Psychology & Public Health, Salomons Centre for Applied Psychology, Canterbury Christ Church University
Susanna Howard – Founder & Artistic Director, Living Words
Julian West – Musician & Head of Open Academy, Royal Academy of Arts
Barbara Stephens – CEO, Dementia Pathfinder
Arti Prashar – Artistic Director and CEO, Spare Tyre
Damian Hebron – Head of Arts, Cambridge University Hospital, and Director, London Arts in Health Forum
David Cutler – Director, The Baring Foundation
Alice Thwaite – Co-director, Equal Arts

Article and interview content

Dementia Engagement and Empowerment Project (DEEP): Words Matter guide
Dr Gill Windle, Professor of Ageing and Dementia Research, Bangor University
Dr Gill Windle (Professor of Ageing and Dementia Research, Bangor University), Dr Katherine Algar-Skaife (Research Officer, Bangor University), and John Killick (writer & poet)
Luke Pickering-Jones (Flintshire County Services) and Dr Katherine Algar-Skaife (Research Officer, Bangor University)
Ezinma Mbonu, Senior Lecturer, University for the Creative Arts

Advice on content and e-learning

Development of course content was supported by Prof Sebastian Crutch (UCL), Prof Paul Camic (Canterbury Christ Church University), Julian West (Royal Academy of Music) and Dr Hannah Zeilig (London College of Fashion, University of the Arts London).

Online learning expertise was provided by Joanna Stroud (Distance Learning Facilitator, UCL).

Filming

In addition to all the contributors who gave their time to be filmed for this course, we would especially like to thank Striker Productions for the filming and editing of all the video learning steps.

Additional support

Finally we would like to thank Dr Chris Hardy, Dr Ross Patterson and Ayesha Khatun (all at the Dementia Research Centre) for providing editorial support.