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Skip to 0 minutes and 14 secondsWhat are the benefits for data sharing? Actually, for researchers and research teams, they can share their research information. And scientific communities, they can, you know, identify who has done what, and, you know, students they can know what is doing what, when, who is, you know, whose research. And among public and funding agencies as well. So breaking through barriers. Data sharing brings about the opportunity to better healthcare outcome but still challenging. For example, like there is still unstructured medical data in many places Incompatible formats. Anonymous with strict protective measures but not completely foolproof. Highly sensitive healthcare data considered a hindrance to transparency So reuse and sharing issues.

Skip to 1 minute and 0 secondsFor example, like for faculty and researchers, they are not fully aware of the benefits to data sharing. Poor quality of data sets. Don't want to lose control of data or fear of criticism or legal ramifications. For students, some things they don't understand the significance of data sharing, a lack of training of data management, unclear about who is responsible for the data in team projects, and uneasy about sharing data, you know, is potentially confidential. And of course, there are public trust issues in data sharing as well. For example like privacy, an individual’s right to one’s information and what’s shared and how its used. For confidentiality, to prevent data from being exposed to unauthorized parties.

Skip to 1 minute and 42 secondsAnd security, confidentiality, integrity, the ability to ensure that data is an accurate and unchanged representation of the original secure information and availability data is accessible to those who are authorized to access, process, and disclose. So, there are legal and ethical limitations as well. For example like copyright, representation of data graphs tables models, etc. or institutional data policies licensing like institutional review board policies, funding agency policies, etc. So there are some data policies for example like the National Institute of Health and the National Science Foundation about data sharing, and open data. What is open data? The open knowledge foundation has defined open data

Skip to 2 minutes and 27 secondsas data sets release with the following terms: for example, like availability and access, reuse and distribution and a universal participation. Then it will be called as open data. So few examples of open data from Harvard University, from South Australia United Kingdom and from WHO. and links are also provided here

The Benefits for Data Sharing and Current Chagllenges

What are the benefits for data sharing? Prof. Usman Iqbal will further explain how data sharing helps the researcher, scientific communities, student, public and funding agencies. Then he will point out the challenges of data sharing.

At the final slide, Porf. Iqbal give some links of open data sources:

Harvard university Open Health Data

United Kingdom, Government digital service, DATA.GOV.UK

WHO, Global Health

Take some time to review each website. On thier website, click on “support” or “about” section and you can see the purpose and potential services that each website provided. Do they anything in common? Feel free to share what you find out that is interesting.

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Pooling Healthcare Data Around the World

Taipei Medical University

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