Links to further information on dementia and design for dementia

WHO – The Global Dementia Observatory (GDO) (International)

The Global Dementia Observatory (GDO) Knowledge Exchange Platform (hereafter referred to as ‘the GDO KE Platform’) contains key resources to support the implementation of the Global action plan on the public heath response to dementia 2017-2025 and its seven action areas. The GDO KE Platform enhances countries’ and communities’ response to dementia. It provides a space for stakeholders to share resources (e.g. policies, guidelines, case studies and examples of good practice) available at no-cost, to facilitate mutual learning and promote the exchange of knowledge in the area of dementia.

World Alzheimer Report 2020 (International)

Design, dignity, dementia: Dementia-related design and the built environment The World Alzheimer Report 2020 gives a global perspective of dementia-related design that takes a cross cultural approach and spans across two volumes, including 84 case studies and interviews with leaders in the field of dementia design.

ISO Dementia Inclusive Communities (International)

ISO/TC 314 WG 2 works towards a standard intended to provide guidance to communities on principles, processes, tools, and integrative measures that determines dementia-inclusive communities.

WHO – 2021 – Towards a dementia inclusive society (International)

Towards a dementia-inclusive society: WHO toolkit for dementia-friendly initiatives supports individuals, communities and countries in raising awareness of, and empowering people living with, dementia to remain in, and be a significant part of, their community. The toolkit provides practical guidance and tools that can support efforts, including planning and implementation activities, to create dementia-inclusive societies.

National Dementia Office (Ireland)

The National Dementia Office (NDO) was established in 2015 in accordance with the launch of the National Dementia Strategy (2014). The NDO provides leadership at a system level for the implementation of the strategy. Its role and function is to oversee the implementation, monitoring, and ongoing evaluation of the National Dementia Strategy. The NDO is established under the remit of the National Social Care Division HSE.

The Dementia Services Information and Development Centre (Ireland)

The Dementia Services Information and Development Centre (DSiDC), established in 1998, is a national centre for excellence in dementia and is committed to best practice in all aspects of dementia care. Their vision is of a society where the civil and legal rights of people with dementia are fully respected and they are able to participate in the making of all decisions that affect them without discrimination or prejudice. The DSIDC mission is to transform people’s understanding and awareness of dementia through our educational programmes and research, informed by the voice of the person with dementia and those around them

Sterling (UK)

DSDC is an international centre of knowledge and expertise dedicated to improving the lives of people with dementia.

The European Working Group of People with Dementia (EWGPWD) (Europe)

The European Working Group of People with Dementia (EWGPWD) was launched by Alzheimer Europe and its member associations in 2012. The group is composed entirely of people with dementia, who are nominated by their national Alzheimer associations. They work to ensure that the activities, projects and meetings of Alzheimer Europe duly reflect the priorities and views of people living with dementia. The members of the EWGPWD actively participate in Alzheimer Europe’s annual conferences and give presentations and/or represent the group at other international events and meetings, both in their countries and internationally (for example, at the European Parliament in Brussels or the Dementia World Council). They contribute to consultations and do public involvement work for different European projects in which Alzheimer Europe is a partner, as well as contributing to other areas of the organisation’s work. Members of the group have also contributed to research conducted by external organisations and have co-authored articles published in peer-reviewed journals on the topic of public involvement in dementia research.

The Dementia Centre (Australia)

Dementia-centred design is more than that. It can mean the difference between someone maintaining their independence or not. Enabling design cues reduces the cognitive load for people with dementia, allowing them to move instinctively in the space. A leader in the field, The Dementia Centre’s expertise is both evidence-based and proven in practice. We offer courses such as the International Design School, DeMEntia Design School and bespoke design masterclasses. We also provide Dementia Choices – independent product endorsement for dementia-specific products that meet research- and practice-based criteria.

If you are involved with or know of any organisations or sources for information related to dementia or design for dementia please add these to the comments below.