Colin Royle
My name is Colin Royle and I previously cared for my dad. He received a personal health budget in 2009 which transformed his life. I now work for NHS England and NHS Improvement.
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Agree. I think in reality, personalised care isn't yet business as usual but when delivered well, can make a huge difference.
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That's really encouraging to hear @MichaelThorpe It's a good point that you highlight about where you live sometimes impacting the quality of care available
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Brilliantly put @AliceUnsworth
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Sounds like you have a really rounded perspective to bring. Hopefully you might be interested in progressing through to Step 3 and becoming a Peer Leader :)
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Such an important point @KeithHall Joined up care around the whole person is essential to treatment and living a good life
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So well articulated @ShaunEveringham
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Really pleased you've enjoyed it Shaun. Hopefully you might be interested in applying for Step 3?
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That's fantastic that you are interested in Step 3. We have a course beginning shortly so do email us and hopefully we can get you on it! :)
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This is a really good point @AndyHenshaw Often when developing policy and widening ideas for personalised care, our team looks at what has worked/hasn't worked in other countries and therefore what can be done differently or in addition here :)
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What a brilliant reflection @MichelleConway Criminal Justice is a big passion of mine since previously training to be a psychologist in this space. We did some work in 2019/2020 about giving people in prison settings a personalised care and support plan and also access to social prescribing upon release. It would be great if you're interested in progressing to...
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This is a lovely way of describing the importance of self-management education :)
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Lovely reflection @GillianParkin
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I agree @ShimalJose it really does. As our Director James Sanderson often says, doctors and medical professionals are experts in our treatment needs, and we are experts in ourselves. It's vital that we join that knowledge together to get the best possible outcomes
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What a brilliant reason for joining the course :)
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Ooh these sound like qualities of a Peer Leader @AngelaLennon I hope you enjoy Step Two and are interested in progressing to Step Three :)
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Would love to hear more about the Sunflower scheme? :)
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Really good understanding I'd say - it can be difficult but also people are under immense pressure :)
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That's a great reflection @DebraDulake In Step Two of the programme, we discuss more about sharing information with others and how to do that - hopefully it is something you are interested in progressing on to
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@PAULPRICE Completely agree Paul. Only by scaling up as we go along and learning from what works well and doesnt work well will get us to our end goal. We do need it immediately, sadly it's just slightly hit and miss but will become more commonplace over the next few years
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Fantastic. Maybe you're interested in applying for Step 3 and becoming a Peer Leader? We have a course that starts on 5th September :)
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Good to see you Peter. Glad you enjoyed the Kings Fund video
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Really glad you enjoyed it @RachelPetty Makes it much easier to understand doesnt it
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Would be great to hear more about this @DeniseMurtagh - we've supported quite a bit of work around menopause recently
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Completely agree @LucyHarding Sounds like you may want to be a Peer Leader? :)
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Colin Royle replied to Honey Attridge
Hi @HoneyAttridge We recently had a group of fantastic women go through our course with Perinatal Mental Health and work closely with their programme. Hopefully you're thinking of doing Step Two and applying for Step Three and getting involved? :)
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Colin Royle replied to Zenab Barry
@ZenabBarry Excellent. Really glad :)
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That's great @CarolCooper-Taylor We're doing a lot of work in this area at the moment so plenty of opportunities for our Peer Leaders to be involved
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Wonderfully put @Markmiller
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Colin Royle replied to David Stone
Sounds like what a Peer Leader does @DavidStone :)
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Colin Royle replied to Ali Earle
Insightful reflection @AliEarle
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Colin Royle replied to Zenab Barry
Hi @ZenabBarry Just to let you know - We will be running a Step Three course from Jan 31st if you might be interested in becoming a Peer Leader.
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Colin Royle replied to Sarah Wall
It's fantastic isn't it @SarahWall We will be running a Step Three course from Jan 31st if you might be interested in becoming a Peer Leader and sharing your own personal story?
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Colin Royle replied to David Stone
Really good advice @DavidStone
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Colin Royle replied to Zenab Barry
Agree with all of the above @ZenabBarry Brilliantly put
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Brilliant @RogerSmith , really glad you'll be using this to support others. Just to let you know, we have a Step 3 course starting on 31st January. Email england.pldp@nhs.net if you want to know more
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What fantastic experience @AnnNutt Sounds like you're in the right place :)
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Brilliantly put @RogerSmith
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Colin Royle replied to elaina ark
Thanks for sharing this with people @elainaark we really appreciate it. The pandemic has certainly brought its challenges, especially for disabled people and people who were asked to shield. Becoming a Peer Leader is a great way to influence and collaborate on some of the key decisions that are made, so hopefully will be something that interests them.
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Colin Royle replied to Amy BUTLER
Really pleased you're enjoying it @AmyBUTLER
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Colin Royle replied to Peter Trevanion
Really pleased you're enjoying it @PeterTrevanion
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Colin Royle replied to DUVIE DAFINONE
Excellent way of putting it @DUVIEDAFINONE and really pleased it is motivating you to learn more. Maybe even Step 3 will be of interest? :)
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Colin Royle replied to Darren Chamberlain
Really pleased to hear you're enjoying it @DarrenChamberlain
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What a lovely example of fantastic staff and the importance of seeing somebody as a person. Thanks for sharing this @JulieRoseMonteith
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Really glad you enjoyed Step 1 @ElenaL and hope you enjoy Step 2 just as much :)
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This is excellent @BrianJones Hope you find Step 2 just as interesting and who knows, may even be interested in applying for Step 3 at the end :)
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Really glad you enjoyed Step One @JohnConway and hope you find Step 2 just as useful :)
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Colin Royle replied to Aileen Chick
Lovely perspective @ElaineR. Does this mean you might also be interested in applying for Step 3?
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Colin Royle replied to Peter Trevanion
Thanks Peter. It's always interesting hearing how things work in other countries. It sounds reasonably similar to Direct Payments that we have where people are given choice and control over who provides their care :)
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Colin Royle replied to Katy McGunigle
Thanks Katy. I think you might really enjoy some of the face to face stuff we do on Step Three :)
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Colin Royle replied to Anthony Atherton
So sorry for your loss Anthony. Hope it was a good experience of care at end of life - it is so important to have that as we discovered
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Colin Royle replied to Aatish Shah
So pleased you have found the information helpful Aatish :)
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Colin Royle replied to Lindsey Stedman
Really pleased you've found it helpful Lindsey
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Colin Royle replied to Eileen Stonock
This is really positive Eileen :)
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Colin Royle replied to Peter Trevanion
Hi Peter. Hello from England :) It would be great to hear if personalised care is delivered in Australia?
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This is really well explained @DavidLillicrap and you're right, the culture change does need to be with people as well as in the system as well
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Colin Royle replied to Rodney Earp
That's brilliant @RodneyEarp really pleased you've enjoyed the course. Might Step 3 be something you're interested in applying for?
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Colin Royle replied to Lara Field
Sounds like a really positive way to support people :)
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Colin Royle replied to Lara Field
That's great @LaraField There is a link at the end of Step Two to register interest. Do let me know if you miss it :)
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Colin Royle replied to Lara Field
That's fantastic @LaraField I wonder if you might be interested in progressing to Step 3?
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Really pleased @elizabethlloyd-dehler
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What a lovely way of explaining it - 'compassionate distance' :)
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Colin Royle replied to Terri Jezeph
Hi @TerriJezeph There was definitely learning from what happened in social care. It's why as a coproduction group, we included in the key features for a personal health budget that somebody must have the three options available to hold and manage the budget so they could have support from a third party where needed
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Lovely reflection
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Brilliantly summarised @MikeBrooks
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What a fantastic example of sharing good quality information and the potential impact it can have
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Colin Royle replied to Terri Jezeph
This is fantastic to hear @TerriJezeph Really pleased you're learning lots. Might Step 3 be something you're interested in applying for?
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That's great to hear @RonnieCottrell So glad you're feeling confident to share some of the information that you've learned. Maybe you're interested in joining Step Three as well?
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Colin Royle replied to Mike Brooks
Good description Mike - retreating, not withdrawing
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I like this description @RodneyEarp We often describe this as a 'bottom up approach' led and driven by people themselves :)
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Colin Royle replied to Carmelo Di Maria
Fantastic examples of Supported Self Management @CarmeloDiMaria And as you say, many of these skills, qualities and behaviours are also needed in the role of a Peer Leader as well :)
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Colin Royle replied to Sarah Pritchard
Brilliant example @SarahPritchard These sound like the qualities of a Peer Leader. Maybe you're considering doing Step 3?
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Colin Royle replied to Carmelo Di Maria
I love that - a 'virtuous circle' :)
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Absolutely @TerriJezeph This really can make a difference to both a person's experience and also how their health is managed
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Colin Royle replied to Kat H
Lovely comment @KatH This story is a great example of both the difference a PHB can make but also of the culture change still needed within health and care
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Colin Royle replied to Liz Greenwood
So well summerised @LizGreenwood
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Brilliantly put :)
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It's a really interesting point @LW People's experiences directly correlate to their confidence in the system and their ability to influence both their own care and the wider system as a whole
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Great to see you here @ShelleyHitchin
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Perfect @RonnieCottrell So good to hear such passion to deliver personalised care
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Great @KennethW Hope you Step 2 :)
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Brilliant @SarahPritchard Hope you learn lots of info to take back and hopefully encourage some of them to do the course :)
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We hope you enjoy it @TerriJezeph :)
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Hi @CarmeloDiMaria I think it is definitely a possibility as we move into these virtual spaces. As long as both parties on the call are comfortable with it, it certainly makes sense. We record MS Teams meetings frequently with permission :)
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Very true @LizGreenwood While some great progress has been made, it needs continuing wider understanding as to how to spot the signs of people who may be struggling with their mental health
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Great that you have experience from both sides Maisie. Maybe Step 3 might be of interest to you?
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I must admit that when I first started supporting local people, I invested so much time and energy and struggled to maintain my boundaries. Thankfully I learned how to ask useful and probing questions that would instead support the people themselves to invest their time and energy to getting the right support
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Colin Royle replied to Jenny Fitzsimmons
One of the things our local carers service did was a 'course'/support group for life after caring although I know this isn't wide spread. It would be good if more attention was paid to it
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That's very true @ElizabethHopkins and something we were discussing on a mental health first aider course recently. More knowledge and understanding to different types of mental ill health needs to be continued to be raised and hopefully personalised care can have a role in that
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Colin Royle replied to Colin Stodel
I wonder too @ColinStodel with increased waiting lists for elective care and impact of long Covid and on mental health. As it currently stands we're being told that the Long-Term Plan remains the long-term plan
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Colin Royle replied to Jenny Tata
Really pleased you've enjoyed them and benefited from them @JennyTata In Step 3 we have some sessions over MS Teams as well where people can connect and practice certain skills to influence change
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That's brilliant to hear @ElaineBarter It's experiences like this which can make such a huge difference to ongoing health
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Colin Royle replied to Anthony Potter
Sorry to hear you had this experience @CT It is important to open up the conversation earlier around end of life. It can feel difficult but it can also be really important to do it
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This is really true @CandycePrevett and really well explained. I remember thinking this in a previous role working in prisons - we could only treat and support people in the context of their lives. Looking at problems in isolation just had the opposite effect
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Hi @CT Hope this helps - https://www.nhsconfed.org/publications/acronym-buster
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Thanks @CT We do have an acronymn buster if you wanted me to send it to you? It's pretty huge then as you can imagine?
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Really hope you manage to get the care that you need. It's great that you have ambitions to want to go on and help other people and use your different skills and experiences to do this
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I agree. We always talk about 'people' and 'people with lived experience' as that's what we are :)
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Brilliant, really hope it helps them :)
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Colin Royle replied to collette Tipton
Lovely way of doing things
