Colin Royle

Colin Royle

My name is Colin Royle and I previously cared for my dad. He received a personal health budget in 2009 which transformed his life. I now work for NHS England and NHS Improvement.

Activity

  • That's great @CarolCooper-Taylor We're doing a lot of work in this area at the moment so plenty of opportunities for our Peer Leaders to be involved

  • Wonderfully put @Markmiller

  • Sounds like what a Peer Leader does @DavidStone :)

  • Insightful reflection @AliEarle

  • Hi @ZenabBarry Just to let you know - We will be running a Step Three course from Jan 31st if you might be interested in becoming a Peer Leader.

  • It's fantastic isn't it @SarahWall We will be running a Step Three course from Jan 31st if you might be interested in becoming a Peer Leader and sharing your own personal story?

  • Really good advice @DavidStone

  • Agree with all of the above @ZenabBarry Brilliantly put

  • Brilliant @RogerSmith , really glad you'll be using this to support others. Just to let you know, we have a Step 3 course starting on 31st January. Email england.pldp@nhs.net if you want to know more

  • What fantastic experience @AnnNutt Sounds like you're in the right place :)

  • Brilliantly put @RogerSmith

  • Thanks for sharing this with people @elainaark we really appreciate it. The pandemic has certainly brought its challenges, especially for disabled people and people who were asked to shield. Becoming a Peer Leader is a great way to influence and collaborate on some of the key decisions that are made, so hopefully will be something that interests them.

  • Really pleased you're enjoying it @AmyBUTLER

  • Really pleased you're enjoying it @PeterTrevanion

  • Excellent way of putting it @DUVIEDAFINONE and really pleased it is motivating you to learn more. Maybe even Step 3 will be of interest? :)

  • Really pleased to hear you're enjoying it @DarrenChamberlain

  • What a lovely example of fantastic staff and the importance of seeing somebody as a person. Thanks for sharing this @JulieRoseMonteith

  • Really glad you enjoyed Step 1 @ElenaL and hope you enjoy Step 2 just as much :)

  • This is excellent @BrianJones Hope you find Step 2 just as interesting and who knows, may even be interested in applying for Step 3 at the end :)

  • Really glad you enjoyed Step One @JohnConway and hope you find Step 2 just as useful :)

  • Lovely perspective @ElaineR. Does this mean you might also be interested in applying for Step 3?

  • Thanks Peter. It's always interesting hearing how things work in other countries. It sounds reasonably similar to Direct Payments that we have where people are given choice and control over who provides their care :)

  • Thanks Katy. I think you might really enjoy some of the face to face stuff we do on Step Three :)

  • So sorry for your loss Anthony. Hope it was a good experience of care at end of life - it is so important to have that as we discovered

  • So pleased you have found the information helpful Aatish :)

  • Really pleased you've found it helpful Lindsey

  • This is really positive Eileen :)

  • Hi Peter. Hello from England :) It would be great to hear if personalised care is delivered in Australia?

  • This is really well explained @DavidLillicrap and you're right, the culture change does need to be with people as well as in the system as well

  • That's brilliant @RodneyEarp really pleased you've enjoyed the course. Might Step 3 be something you're interested in applying for?

  • Sounds like a really positive way to support people :)

  • That's great @LaraField There is a link at the end of Step Two to register interest. Do let me know if you miss it :)

  • That's fantastic @LaraField I wonder if you might be interested in progressing to Step 3?

  • Really pleased @elizabethlloyd-dehler

  • What a lovely way of explaining it - 'compassionate distance' :)

  • Hi @TerriJezeph There was definitely learning from what happened in social care. It's why as a coproduction group, we included in the key features for a personal health budget that somebody must have the three options available to hold and manage the budget so they could have support from a third party where needed

  • Lovely reflection

  • Brilliantly summarised @MikeBrooks

  • What a fantastic example of sharing good quality information and the potential impact it can have

  • This is fantastic to hear @TerriJezeph Really pleased you're learning lots. Might Step 3 be something you're interested in applying for?

  • That's great to hear @RonnieCottrell So glad you're feeling confident to share some of the information that you've learned. Maybe you're interested in joining Step Three as well?

  • Good description Mike - retreating, not withdrawing

  • I like this description @RodneyEarp We often describe this as a 'bottom up approach' led and driven by people themselves :)

  • Fantastic examples of Supported Self Management @CarmeloDiMaria And as you say, many of these skills, qualities and behaviours are also needed in the role of a Peer Leader as well :)

  • Brilliant example @SarahPritchard These sound like the qualities of a Peer Leader. Maybe you're considering doing Step 3?

  • I love that - a 'virtuous circle' :)

  • Absolutely @TerriJezeph This really can make a difference to both a person's experience and also how their health is managed

  • Lovely comment @KatH This story is a great example of both the difference a PHB can make but also of the culture change still needed within health and care

  • So well summerised @LizGreenwood

  • Brilliantly put :)

  • It's a really interesting point @LW People's experiences directly correlate to their confidence in the system and their ability to influence both their own care and the wider system as a whole

  • Great to see you here @ShelleyHitchin

  • Perfect @RonnieCottrell So good to hear such passion to deliver personalised care

  • Great @KennethW Hope you Step 2 :)

  • Brilliant @SarahPritchard Hope you learn lots of info to take back and hopefully encourage some of them to do the course :)

  • We hope you enjoy it @TerriJezeph :)

  • Hi @CarmeloDiMaria I think it is definitely a possibility as we move into these virtual spaces. As long as both parties on the call are comfortable with it, it certainly makes sense. We record MS Teams meetings frequently with permission :)

  • Very true @LizGreenwood While some great progress has been made, it needs continuing wider understanding as to how to spot the signs of people who may be struggling with their mental health

  • Great that you have experience from both sides Maisie. Maybe Step 3 might be of interest to you?

  • I must admit that when I first started supporting local people, I invested so much time and energy and struggled to maintain my boundaries. Thankfully I learned how to ask useful and probing questions that would instead support the people themselves to invest their time and energy to getting the right support

  • One of the things our local carers service did was a 'course'/support group for life after caring although I know this isn't wide spread. It would be good if more attention was paid to it

  • That's very true @ElizabethHopkins and something we were discussing on a mental health first aider course recently. More knowledge and understanding to different types of mental ill health needs to be continued to be raised and hopefully personalised care can have a role in that

  • I wonder too @ColinStodel with increased waiting lists for elective care and impact of long Covid and on mental health. As it currently stands we're being told that the Long-Term Plan remains the long-term plan

  • Really pleased you've enjoyed them and benefited from them @JennyTata In Step 3 we have some sessions over MS Teams as well where people can connect and practice certain skills to influence change

  • That's brilliant to hear @ElaineBarter It's experiences like this which can make such a huge difference to ongoing health

  • Sorry to hear you had this experience @CT It is important to open up the conversation earlier around end of life. It can feel difficult but it can also be really important to do it

  • This is really true @CandycePrevett and really well explained. I remember thinking this in a previous role working in prisons - we could only treat and support people in the context of their lives. Looking at problems in isolation just had the opposite effect

  • Thanks @CT We do have an acronymn buster if you wanted me to send it to you? It's pretty huge then as you can imagine?

  • Lovely @ColinStodel

  • Really hope you manage to get the care that you need. It's great that you have ambitions to want to go on and help other people and use your different skills and experiences to do this

  • I agree. We always talk about 'people' and 'people with lived experience' as that's what we are :)

  • Brilliant, really hope it helps them :)

  • Lovely way of doing things

  • Hi @CT Things can sometimes be tricky to follow with the acronyms. We decided to try and break them down as much as possible, but also leave them in as people will continue to use them in the NHS so it might trigger some learning people have got when having discussions with their care team. Most of the people on the course do have lived experience as well so...

  • A really good example. I'm sorry you had this experience - it provides a perfect illustration of the need to have informed 'patients'