Alan G. Richardson
Former carer for my late mother with Dementia for 15 years until 2009. Volunteer as NIHR/JDR Champion & Alzheimer's Society Local Rep/Research Network also GMC PPI. Member Dementia Researcher.
Location South West England
Activity
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There are many opportunities with various Organisations and if can be of any help please let us know. In fact the pandemic has resulted in many on line opportunities too - which never envisaged. As being part of away days (Online), meant contact from Universities to meet and share story and being able to feel part of - with many questions and answers.
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Alan G. Richardson replied to Tina Dowell-Lucas
Really good to see your comments. Research always appealed to me as a Former Family Carer. It has opened up many avenues for me - My main focus around Dementia - as monitor projects for a number of organisations. Which has now led to being made a member of Dementia Researcher. Good Luck with Your Journey. I feel privileged to be part of this course.
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Alan G. Richardson made a comment
Looking forward to mentoring on this course run , and hope people enjoy taking part. Research has many avenues.
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Alan G. Richardson replied to Julia Wolfe
@JuliaWolfe Hello - welcome to the course - was brought up as part of the Service family - as my late father was in for 35 years.
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@SabinaMaas There are a lot of studies that are around this topic, in fact I am monitoring some of these at the moment for several dementia focussed organisations. Some are around activity and include home based, community based and also care home based. This is real benefit of this course in raising understanding.
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Alan G. Richardson made a comment
Looking forward to reading feedback from people on the Course. Hope you all get enlightened on the opportunities that are there.
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My journey has revolved around this, as being involved in Research has further enabled me to continue a 10 year Patient and Public Involvement journey. This course has also enabled me to share with others about Health Research. Hope you enjoy course.
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Alan G. Richardson replied to Lucy A
@LucyA how satisfying to all to see these comments about the course - all the best for the future.
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Agree with your comments, that is why courses like this help to break the barriers to understanding.
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Sums up really well, the many ways we can be involved - my journey has also shown the passion by those involved. All the Best for future too.
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Alan G. Richardson made a comment
Welcome and hope you enjoy this next run of the Course, looking forward to meeting with you and sharing experiences and commenting alongside other Mentors.
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Alan G. Richardson replied to kirsty Mapstone
What pleasing comment to see - all best for future.
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Just read your post - agree we are in this together. I became part of JDR- Join Dementia Research in 2015 - and have always felt involved. Invited to speak at events and also share why volunteer. Why find being part of this course so positive too.
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Enjoy seeing these comments. Was how my involvement happened - including being invited to share my story. Am consider fortunate to have been involved too with - the 3 groups you mention too. My favourite expression - Together We Can Make A Difference.
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Reading your comments, this is one of the reasons that have kept my involvement. I Believe that the more we share our ways of involvement then - the more encouraging for others. Why this Course is so I believe important to have stories shared too. My journey hopefully helps by sharing.
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Alan G. Richardson replied to Ari S
Just seeing your comments and this has certainly been the reason that and how my involvement came about.
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Alan G. Richardson made a comment
Welcome to Week 3 - and feel free to ask anything about being involved too. Hope you have enjoyed the Course.
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Alan G. Richardson made a comment
Welcome to the Course - Health Research is a journey that has so many routes into and variety of projects. Looking forward to catching up during the COURSE.
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@SarahMorley - Agree with your comments and have been impressed since becoming involved over last 5 years with Research in a number of ways. Have never felt an outsider and that is so important - as we are in this together.
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Agree and this course is a really good insight.
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Glad you enjoyed insight - there are so many ways to be involved. I have enjoyed being involved in variety of Research activities - and can be so motivating. Together We Can Make A Difference - my favoured saying.
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Alan G. Richardson replied to Sue Heap
Hello Sue - believe if I am right - that must have been around february time - hope you are enjoying the course - believe well structured. Yes and the Signposting was well shared. Best Wishes. Alan
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Glad you have enjoyed the Stories - they can be so powerful and pleased to see reviving interest in participating. Am many times amazed at other opportunities that arise too.
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Enjoy reading your comments - and with there being so many ways to be involved - lots of opportunities arise. By seeing everyones views there are so many positives from this course. Have enjoyed each run besides being involved.
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Pleased to see your comments. My studies have mainly focussed around Carers and Dementia. Know that Join Dementia Research for an example, have people register their interest - with or without dementia.
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Enjoyed reading this comment - and the lay appreciation - have found on involvement over last 10 years that such a difference can be made by having equal say. My favourite expression is Together We Can Make A Difference.
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Alan G. Richardson made a comment
There are many ways of Research Involvement. Sometimes Caring for someone - in my case with Dementia - can lead to sharing experiences too. In my case first with Join Dementia Research - then led to Alzheimer's Society and subsequently to involvement with NIHR - and being involved with this Course.
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Alan G. Richardson made a comment
Interesting looking at the comments so far. Really positive to see the engagement and having been involved in a number of Research Projects - will add more comments later on - Enjoy the course.
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Alan G. Richardson replied to [Learner left FutureLearn]
@LynneParker since being involved in Research in a number of ways - back up your comments - totally.
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Alan G. Richardson made a comment
How seen so many comments around Course, and the understanding of the wide range of ways to contribute. Also the opportunities that arise. My favoured expression is Together We Can Make A Difference. Being part of the Course has been such a privilege with the Team.
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Alan G. Richardson replied to Jane Owen
What positive and welcoming response and comments.
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Pleased you enjoyed and comments - the range of presentations help to highlight the ways people can be involved.
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Pleased to see your comments about course. It has such great feedback.
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Has been a really friendly insight and comprehensive understanding -helping to show range of research available and why people get involved. Glad you found this so.
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Good to read comments, have found it really good to be part of. Sharing Experiences.
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Hi and this is really good to read - we are all in this together and so many oppportunities to be involved in research together.
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Alan G. Richardson replied to Gift Mathebula
@GiftMathebula One of the features of the course is the inclusion of volunteers and recognition too for patient and public involvement..
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Alan G. Richardson replied to Helen Sloan
Hello and welcome to the Course.
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Alan G. Richardson replied to Judith Bell
@JudithBell - good to read comments and responses, as a Join Dementia Research Champion - sometimes it has been not easy to promote how people can be involved. Highlights needs for this understanding being part of course.
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Alan G. Richardson replied to Maddie Shannon
Good to see the interactive involvement as part of content making a difference. Is what attracted me to involvement.
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Alan G. Richardson replied to Irene Soulsby
@IreneSoulsby Hello again good to catch up again on Course - from a distance.
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It is a great insight and well paced - am trying to work on a college at the moment to include in future hopefully.
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@MaddieShannon Welcome to the Course - I was in marketing in working life - and so pleased and energised to be part of Health Research.
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Alan G. Richardson made a comment
Pleased to say hello too and welcome to the course. Looking forward to following and also looking at and responding to comments.
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Have been involved in research for coming up to 5 years now - and there are variety of ways - mostly for me with Dementia as former carer for family member.
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Glad you have found the involvement and variety good - this is my first involvement as contributor and mentor - and so positive on.
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Alan G. Richardson replied to Terry Emery
Have been involved in many different ways and that is the beauty of the way this programme is run.
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Has been really good to be involved in this - and such a variety of encouragement too.
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Alan G. Richardson replied to Tina Court
Hi - I first got involved in various ways following speaking as an End of Life Dementia Carer for family member- at NHS Conference in Devon. Following this found the invites to share experiences resulted in expanding activities into Research. There are so many ways people can be involved.
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This sounds like an opportunity to engage with those who take part in or sharing the Research that is going on. Am amongst those who give talks around public involvement and experience. In my case volunteering on Dementia and Caring with Join Dementia Research and Alzheimer's Society Research Network. Always lots of questions asked - and we signpost for this....
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As one of the contributors and mentors - have received such satisfaction from being involved - because we are in this together wanting to share and encourage involvement.
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Alan G. Richardson replied to Toni Gibson
@ToniGibson my twitter is @AlanGDem
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Alan G. Richardson replied to Toni Gibson
Helli Toni- you can help the doors being opened. Join Dementia Research is one that does this too and also there are many people on research always looking for people to support. I use my twitter account in this respect. Let me know if you would like mine. A
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totally agree with this, being invited to part of in involvement video week 3, also mentoring. The awareness created has to be really positive. in fact i also decided to do the course too - which had not planned to do.
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@EleanorOKell Being part of this course, has shown the benefits of it being run - with such interesting discussions too. The Public Voice - which I have been involved in over last 10 years - can make a difference. In the first year, remember how they called it - Primary Care Trust at that time - invited me to sit on their monthly communications team and...
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Alan G. Richardson replied to Toni Gibson
Of Interest - currently a couple of projects that am a Research Network Volunteer Monitor for relate to Strokes, Dementia and Co-morbidity, for Alzheimers Society.
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Hello Kathleen, seeing your comments in last paragraph about preventing and slowing and including dementia. Being an Alzheimers Society Research Volunteer and Monitor. You may be interested ingoing to their Website: alzheimers.org.uk and keying in Research. Where you can see funded grants and the variety of these. Please feel free to contact me for more info.
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It has been good being involved with this course and also to share some of the other actions as you have mentioned. Research can be a real eye opener on the many ways of involvement. When reading Grant Applications - you feel part of process.
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Alan G. Richardson replied to Chris G
Totally agree, there are so many opportunities, and so many ways in which people can take part. I have also been doing the course as well as mentoring and being part of. When Caring for late Mother who lived with Dementia - would have been able to share experiences - as my living diaries have only been shared more recently nearly 10 years on.
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In my area, the staff and volunteers from Healthwatch, have become Dementia Friends and have regular inductions. Healthwatch can be found also via national site and then by area. They have a wide remit.
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Alan G. Richardson made a comment
Hope the inclusion in the video has helped. Have been looking at comments and yesterday - something happened again in my home town. Someone looked toward me and the gentleman on his own approached. You are involved around Dementia he said - I wonder if you have a minute. We had a chat, his wife was in another shop which he could see her from. As a result...
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So agree with these points, and the more we can raise awareness, the more people can benefit.
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Hello have just read this and so pleased that you picked this comment up. It is by volunteering that have reached the stage now where have been able to share my story many times, which I believe applies to so many people. If there is one thing that helps others - at the end of the day that is why we all become passionate and this can help research too. Well...
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@CarlaW Hello, seeing your interest and experiences of dementia - am wondering are you a part of the Alz Society Research Network, as know are always wanting people with experience of dementia to join us.
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Hello John - this is a particular interest of mine as there are many aspects that need Research. Some that am involved in currently are around continence, strokes and why some people develop dementia and some do not. Also a number of projects around health and social care - so the more we can share experiences/stories - the better. More than happy to share...
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Besides JDR, am also a Research Network Volunteer for the Alzheimers Society, where we review Grant Applications with a Lay Perspective. Then became one of Monitors on Grants Awarded - there are many opportunities in Biomedical or Care Services and Public Health. I also enjoy meeting new people.
This course is really positive awareness. -
@JohnCastledine Hello and currently am involved as a monitor for Research Grants for Alzheimers Society - one of the many ways people can take part too. My journey started with JDR.
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@ChristineMenzies Hello and good to see the comments, believe we have met before at JDR/PRA Event.
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This is one of my drivers for taking part in Research and there are many variable opportunities. My favourite expression is Together We Can Make A Difference - and a real privilege to be part of this course.
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Alan G. Richardson replied to Emma Robertson
In my case, experience of caring for someone too - my late mother lived with dementia. I currently sit on some research projects at 4 different universities linked with hospitals. My voice has been equally listened to.
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Alan G. Richardson replied to Bex Lewis
Some of the research that am involved in relates to Care Services and Public Health - widening the remits - and looking into quality of life and understanding.
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Alan G. Richardson replied to John Roberts
Having been part of various PPI for 10 years now - have seen many strides in involvement and many research projects have built in lay reviews and participation. Fully believe that this course and insight will give understanding and real wide range of exchanges of views - for outcomes too.
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Hello John, as this insight develops sure these points will be answered - having been a Carer, part of PPI and now Research - my journey has been one of gradual discovery - and finding how involvement becomes rewarding. Feel free to contact if can help.
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@RichardLawson Hello Richard have been on a journey from Caring to PPI then Join Dementia Research and seen the variety of opportunities that arise. Also how we are received by Researchers and now also part of Alz Soc Research Network. Always been accepted as equal and now part of this course - my favourite expression Together We Can Make A Difference.
