Godfred Oduro

Godfred Oduro

I am the Founder and Executive Director of Thalassemia Foundation Ghana. I love advocacy work, research and educating others on Rare Diseases

Location Ghana

Activity

  • Godfred Oduro made a comment
    What is the impact of rare diseases on patients?

    Thalassemia Foundation Ghana has been creating awareness of Thalassemia as rare disease in Ghana. Those whose genotype are AA are mostly affected since some of them carry Thalassemia traits.

  • Godfred Oduro made a comment
    Are some cancers considered as rare diseases?

    Thanks for this information. A lot need to be done on it.

  • Godfred Oduro made a comment
    What is a rare disease?

    How real is rare disease in Africa. Some rare diseases are misdiagnosed causing patient and the family the pain to even know what pertain to them

  • Godfred Oduro made a comment
    Rare diseases: introduction and definitions

    Thalassemia is rare in Ghana and even not diagnosed. Concentration has on sickle cell disease but it is related. About 8 out of 10 people carry Thalassemia traits in Ghana. This is one of the reasons I established Thalassemia Foundation to make people aware of it existance.

  • Godfred Oduro made a comment
    Topics of the week

    It really sad when certain disorders are diagnosed or diagnosed wrongly