Luis Fernandez-Luque PhD
Luis Fernandez-Luque has been involved in eHealth research and development for over 10 years. He is researcher at www.qcri.org & co-funder of Salumedia. https://www.linkedin.com/in/luisfernandezluque
Location Doha, Qatar
Activity
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@KKTay very good point. Nutritional advice is part of cancer management.
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@SukhdevSingh Good question. It really depends, the electro stimulation to enhance muscle strength is quite new in cancer. Using wearables in cancer to track physical activity has been used for quite long. The tricky question here is that technology is changing very rapidly and each cancer (and patient) is different. For that reason, whatever it is introduced...
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@JohnWilliams thanks for sharing this interesting initiative.
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Dear @MarionStrong,
just few months ago they published a study of mobile app for tackling fatigue in cancer which has quite good results (https://www.jmir.org/2017/10/e336).
Regards,
Luis
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Dear Wade,
Thanks a lot for the feedback. I agree it was shallow and strong focus on rehabilitation and physical activity.
What were you missing?
Regards,
Luis
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Luis Fernandez-Luque PhD replied to Wade .
Thanks Wade,
You can read more about them in here (http://www.catchitn.eu/esrs) and check their blog posts (https://www.linkedin.com/groups/10321169).
Regards,
Luis
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Dear Susan,
thanks for sharing.
For patients that have problems exercising in CATCH we are exploring how to simulate the exercising effect with something called artificial exercising, check this video (https://www.youtube.com/watch?v=6LlNfSaXmTM).
Regards,
Luis
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Thanks for sharing the link
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Great idea!!
You can not imagine how many projects have failed for not doing that.
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Dear John,
Thanks for sharing.
I have been in meetings with haematologists dealing with Chronic Myeloid Leukemia and they complained how hard was to cooperate with the GPs (who often were not sure what to prescribe for a patient with CML). As a result, the haematologist were learning how to control things that normally are responsibility of GPs (e.g....
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Dear Sharlene,
thanks for sharing. Can you share some more information about the app? Was it recommender by your doctors?
Regards,
Luis
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Dear Sihle,
There are many good examples on mHealth in Africa, but fewer in cancer.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5568212/
Regards,
Luis
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Very good point.
Further, there are studies showing that more educated people tend to participate more in research. So there are many ways research can be biased.
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Dear Wade,
sorry for the mistakes. I will try to get it fixed.
Regards,
Luis
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Thanks a lot
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Dear Tay,
Thanks a lot for sharing that insight. Precisely for the reason you mentioned there are a lot of mobile solutions for mental health.
In cancer, the example I like the most is SISOM (https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4938887/) designed to improve communication of children with cancer.
However, making something like that for...
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Dear Susan,
thanks for reminding us the importance of providing health to deal with the emotional burden of the disease for both patients and loved ones.
Regards,
Luis
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Dear Sihle,
You are raising a good point. Very often technological advancements are only available to rich patients, and thus these advancements are creating a bigger gap among patients (aka health disparities).
Regards,
Luis
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Dear Wade,
You are right. I am not so sure if I can do it anymore. However, to make it more easy to access the links I added the slides in myslideshare account (https://www.slideshare.net/luis.luque/games-and-mobile-technology-for-cancer). Feel free to check the links in there and let me know if you want something in particular.
Regards,
Luis
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Dear Gill,
There are some studies, but not so many, so it is hard to make a Cochrane review.
This is one of the biggest one that I know (multicenter study). http://pediatrics.aappublications.org/content/122/2/e305?download=true.
An additional problem is that it is very expensive to make such trials, and few people can pay for large scale trials in...
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Dear Manuel,
thanks for sharing your opinion. I agree with you, also very often these questionaries are used without proper validation in the target group.
That is why there is a lot of tracking to use wearables for measuring things that before were monitored with questionnaires (e.g. physical activity)....
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Dear Wade,
I fully agree with you and there are many selling fake cures for cancer, which is extremely sad.
The problem is who is controlling and enforcing the rules. And how to enforce it in the tsunami of misinformation. In my opinion only educating patients to identify what is good information.
Regards,
Luis
FutureLearn Educator
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Dear Young,
You are absolutely right. We are not sure how safe it is the integration of those technologies in the clinical practice. As with any technology we should always evaluate before introducing them. Often we get "blinded" by the hype of new cool technology.
Regards,
Luis Luque
FutureLearn Educator
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Thanks Gill,
Can you share some more information about that app? It sounds really interesting.
Regards,
Luis Luque
FutureLearn Educator
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Dear Alex,
you are absolutely right, many apps are a mere tool for collecting funds or helping researchers.
However, there are some designed to support people living with cancer. For example, this one to help pain management (http://www.sickkids.ca/Research/I-OUCH/Pain-Squad-App/index.html). There are also apps to help in patient rehabilitation,...
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Hi Helen,
in the articles (see bellow) they mention several cancer apps. I like a lot the example of the pain squad (http://www.sickkids.ca/Research/I-OUCH/Pain-Squad-App/index.html) for cancer pain management in children.
It is hard to find apps that are relevant for each patient need. There are many but it is difficult to find good...
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Thanks a lot for sharing your interesting personal experience.
Do patients in the ex-pat community use Skype and Facebook to get social/emotional support while dealing with cancer?
Regards,
Luis Luque
FutureLearn Educator
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Dear Geetha,
Thanks a lot for highlighting the challenges that cancer survivors face. Reducing stigma and miss-information in the general public can help a lot to increase quality of life of people who have had cancer.
In the older population the cancer prevalence is over 10%, so you can imagine that cancer survivors are not just a tiny number of people....
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Dear Orwah,
there are less common than apps for diabetes, but nowadays there more apps available.
https://www.jmir.org/2013/12/e287/
https://www.ncbi.nlm.nih.gov/pubmed/28615159
Regards,
Luis
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Luis Fernandez-Luque PhD made a comment
Dear all,
remember in this link you have the paper (https://www.ncbi.nlm.nih.gov/pubmed/28615159). You can also check an earlier paper (https://www.jmir.org/2013/12/e287/).
Regards and Happy New Year,
Luis
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Dear Elizabeth,
I fully agree with the need of co-design. In many cases the apps are not designed with strong involvement of patients. However, it is hard to identify which type of patients need to be involved. I have seen "IT experts" in big hospitals surprised when I said that we need to involve patients in the design phase and not just in the pilot...
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Thanks
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Dear Manuel,
you are 100% right. There are many apps and it is hard to figure it out how much you can trust them. Not only because of content but also because of privacy.
At the end of the day, the main thing we can do is to help professionals and patients to determine how much they can trust an app.
Regards,
Luis Fernandez-Luque
FutureLearn... -
Dear Rakhat,
I agree with you. Sadly, most funding research is in developed countries. However, in many cases low income countries have done many things with mHealth.
Check some examples here (http://www.unfoundation.org/what-we-do/issues/global-health/mhealth-alliance.html). However, very few in cancer.
Regards,
Luis Fernandez-Luque
FutureLearn... -
Dear Susan,
You idea of using Amazon Dot (Do you mean this? https://www.amazon.com/Dash-Buttons/) is great. Memory problems are quite common, and that is an easy and cheap way to overcome of the issues related to the disease.
We can learn a lot for innovative people, not every innovation comes from researchers.
Regards,
Luis...
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Thanks a lot for your comment. In the course we will give some examples of how mobile health has been used for pain management.
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Thanks a lot Dr. Gill,
It will be great if you share during this course some of the initiatives you are working on. The NHS is in many areas leading the use of digital health for patient empowerment.
Regards,
Luis Fernandez-Luque
FutureLearn Educator -
Dear Maryalice,
Thanks a lot for that comment. I was actually attending few years ago a conference in chronic leukemia in Spain. I suggested an app to make easier the communication between family doctors and specialist and one problem that emerged is who will pay for it. We might have integrated health records, but we don't have integrated work-flows...
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Dear Young,
Thanks for sharing your personal experience. For many years technology has been nearly absent in palliative care, but that is gradually changing. Check this link if you want to learn more about it (https://pulse.embs.org/november-2016/technological-innovation-comes-to-palliative-care/).
Regards,
Luis Fernandez Luque...
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Dear Marion,
Thanks a lot for you comment and your hope that new technologies can help making healthier choices. Often people tend to simplify that information access is the final goal, but changing behavior is.
Regards,
Luis Fernandez-Luque
FutureLearn Educator. -
Dear Brian,
Thanks a lot for your comment. You are right with the optimistic outlook at managing cancer, but as you say advocacy and dealing with other issues such as emotional impact is not going to be reduced, but in my opinion increased.
There are massive resources to be found, but also mis-information. So it is not simple and easy and patients...
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Dear Jean-Alain,
Thanks a lot for your comment. What you dislike about the course? Your feedback will help us a lot to improve it.
Regards,
Luis
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Luis Fernandez-Luque PhD replied to B D
Dear Patricia,
I couldn't agree more with you. At the end of the day having a cup of coffee with friends and family can be as positive (and much more human) than any technological approach.
I am personally interested in technology that can help to socialise. As we are socialising right now in this online course using a UK-based platform with teachers...
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There are some people working on that, but still in research https://www.jmir.org/2016/3/e72/
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Luis Fernandez-Luque PhD replied to Roy D
This app is focusing on that using gamification (https://play.google.com/store/apps/details?id=com.mangohealth.mango&hl=en). There are also some smart pill boxes http://www.tricella.com/
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It is almost there (https://diatribe.org/abbott-freestyle-libre-transforming-glucose-monitoring-through-utter-simplicity-fingersticks). It is not the same, and it has a micro-
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Dear David,
is not only educational and research advancement, it is also commercial. Will researchers like me have to pay Apple (or similar) to get access to data for research?
Regards,
Luis
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Dear Crawford,
Extremely important point.
The truth to be say, only very brave doctors will check the data.
If you share the data. Is the doctor legally liable to check the data and act upon it? Will he/she face lawsuits based on that data which is not 200% its reliability? Will the insurance company agree on extra testing because of that?
Will...
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Dear Roy,
Thanks for the feedback. Next time I will use another room to record the audio.
Regards,
Luis
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That is another potential reason. In our study we tested to have similar level of cognitive state both in the "senior club" and the "nursing home", still it was also more positive the feedback in the "senior club".
The truth is that we dont fully understand where/when/for-whom exer-games will work best.
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Luis Fernandez-Luque PhD made a comment
This video is also quite relevant for the lecture: http://www.cnn.com/2016/10/20/health/brain-training-exercises/
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Dear Sheila,
Thanks for interacting. You will like this video (http://www.cnn.com/2016/10/20/health/brain-training-exercises/)
Regards,
Luis
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Dear Ita,
There are many examples on how new technologies are better used in the 'poor' countries than in the 'rich'. Best examples on the use of mobile technology for health are mainly from 'poor' countries (http://www.who.int/goe/publications/goe_mhealth_web.pdf).
There is a lot of concern that technology is making health inequalities bigger...
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You can also see the documentary of Being Mortal here (https://www.youtube.com/watch?v=VRkr09ZMI3w)
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Those are misspellings. Sorry and thanks for pointing them out. I fixed the slides in here (http://www.slideshare.net/luis.luque/social-computing-iot-and-wearables-for-healthy-ageing).
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Here you have them: http://www.slideshare.net/luis.luque/social-computing-iot-and-wearables-for-healthy-ageing
It is not meant to print them to explain to patients. We dont we create a wikipedia page about the topic?
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Dear Mike,
I am not interacting with the students. I am the 'student' learning from the 'public'.
Regards and thanks,
Luis
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Dear Arthur,
Yes, bad use of exergame can make people redundant. Thanks for the comment.
In our project, we used the exergame as "substitute" to the print-outs for exercising at home/alone.
Regards,
Luis
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Dear Mike,
We did an European project about exergaming for the elderly and tested it in Norway and Switzerland (https://www.ncbi.nlm.nih.gov/pubmed/26346751).
In Norway, we tested it in a senior club (group exercising) and the experience was very positive. In Switzerland we tried in a clinical setting for individual exercising and it did not work. I am...
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Dear Richard,
I agree that technology is moving very fast, I am 33 years old and I do research in technology and very often I feel behind.
Some companies are aiming at making mobile technology easy to use for all (http://www.doro.co.uk/). The problem is often the App makers and not the devices. Facebook is crazy complex for many, specially the privacy...
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Luis Fernandez-Luque PhD replied to B D
Dear Deny,
I fully agree with you. Often privacy is something not considered at all.... You will find many articles on how to involve end-users to make an App nice and user friendly.
In 10 years working in eHealth I have never seen somebody working on making user-centred ethical and privacy design. (I am sure some people has worked on that, but it is...
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Dear Chris,
We have seen that in many European projects. Often it is because of stereotypes about gaming being for teenagers...
This is changing rapidly and some games are being advertise for elderly users (like this one: https://en.wikipedia.org/wiki/Brain_Age:_Train_Your_Brain_in_Minutes_a_Day!).
Regards,
Luis
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Luis Fernandez-Luque PhD made a comment
Dear all,
I put the slides in slideshare, so you can download them any time. Comments (good and bad) are truly welcome!
http://www.slideshare.net/luis.luque/social-computing-iot-and-wearables-for-healthy-ageing
Regards,
Luis
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Dear Mike,
Thanks a lot for your comments. Which areas of what I mentioned in the slides you consider more important?
Regards,
Luis
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Dear all,
Some of you commented me that you wanted the slides, you can find them in here (http://www.slideshare.net/luis.luque/social-computing-iot-and-wearables-for-healthy-ageing).
Regards,
Luis
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Dear Ita,
You can download the slides in here (http://www.slideshare.net/luis.luque/social-computing-iot-and-wearables-for-healthy-ageing).
What was difficult to understand? The slides (some of them)? My talk? My pronunciation or the use of jargon?
Regards,
Luis
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Dear Ita,
You can download the slides in here (http://www.slideshare.net/luis.luque/social-computing-iot-and-wearables-for-healthy-ageing).
What was difficult to understand? The slides? My talk? My pronunciation or the use of jargon?
Regards,
Luis
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Thanks a lot for your comments. It will really help me to improve.
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I agree with all of you. Often we tend to focus on problems and that is de-humanising people. We can not say a "multiple sclerosis patient" but rather a person with multiple sclerosis. There are many things that define us, and by focusing on age (e.g. elderly users) or health (e.g. diabetes) we are oversimplifying what make us human.
I like a lot the...
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Dear Mike,
I couldn't agree more with you!
They did an experiment in Norway, to read the Terms of Use of the average number of apps an user has in its phone. They took 30 hours!!!! (and most of it in jargon that nobody understands!!!).
https://www.youtube.com/watch?v=jCewnvmzhak
Furthermore, who is enforcing privacy? Sadly nobody!!!
Look what...
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Dear Lorna,
The GameUp project I mentioned has not become commercial, so you can not use it.
In a study (in multiple sclerosis) they compared traditional exercising with exergames (e.g. Wii Fit) and found quite encouraging results (https://www.ncbi.nlm.nih.gov/pubmed/25969739).
You might use any comercial exergaming. However, you need to be careful...
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Dear Mike,
The validation of digital health is quite tricky, it is very hard to organise "traditional" clinical studies and also digital health interventions can be affected by many multiple factors (e.g. training, work-flows in the clinic, cultural aspects). I can send you links to clinical studies showing negative and positive results of the use of...
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Dear Brendan,
I am very happy with your comment. We did not think our course as something to engage people looking for getting mental stimulation (but obviously it does) and neither we thought of it as a way to facilitate socialisation.
Your comment highlights that often there are unintended (and positive) consequences of using...
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Hi Christine,
Thanks a lot for your comment. It is not only affordable the key, also how much benefit it brings and that will depend a lot on the individual. Some individuals will requiere a lot of training (e.g. my mother) but others will enjoy and learn very quickly (e.g. my father).
Most of services we describe in this course might not be...
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Hi Ronald,
Very good comments. I think it is not even clear who should pay for those technologies. Relatives? Elderly users? Health providers? Social services?
I remember in Norway in a project we asked elderly users, would you pay for it, and their immediate response was of course not more than any other co-paid health service. In Spain, it would have...
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Hi Lorna,
If you want the slides just let me know and I can email them to you (luis.tromso@gmail.com).
There are many examples on technologies that do not work properly with elderly users (and people with some sort of "disability")....
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That is a "great" strategy. Look it is not just the name but even the logos!
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Hi Richard,
if you want you can email me about the study (luis.luque@norut.no). It is very hard to use the results to make an intervetion, in fact one of our findings is that intervining can be counterproductive since it empowers the pro-anorexia users to continue.
To understand how pro-anorexia users diseminate in social media should help making better...
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There are some projects dealing with Open Data in the health domain. One of the main barriers is not technical but legal. Nearly all the social media data is gathered via APIs of private for profit companies that dont allow to "re-offer" the data in other format.
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You are right that data quality is a big issue, but not only in digital sources. Quality also decreases with the time if you are handling an emergency. The tricky thing is to develop new methods to find out the quality of the dtaa you are working on
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Hello everybody,
here you have an example of an extreme anti-vaccination website which is actually perfectly design: http://www.nvic.org/. How can we tackle websites like this one?
Regards,
Luis
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Hi Eileen,
you can actually do both. It is just the same that when you go to shop in Amazon, it learns what you have been searching so if you are searching for laptops and you click in Amazon then all the information shown will be aiming at improving sales rate.
If you "know" that a person has been using negative searches about vaccination you can...
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Hi Natalie, you are absolutelly right. We did a study on online anorexia communities that it actually demostrated that it is nearly impossible to persuade pro-anorexia people to stop spreading missinformation. http://www.ncbi.nlm.nih.gov/pubmed/23134671
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It is very hard to know the sources of the rumours. For example, some vaccines rumours are due religious issues, other because of political reasons, etc.. http://www.ncbi.nlm.nih.gov/pubmed/24598724
Big companies are also using social media to promote their products. It has been found that a pharma company edited the wikipages about their drugs.
