Colin Royle
My name is Colin Royle and I previously cared for my dad. He received a personal health budget in 2009 which transformed his life. I now work for NHS England.
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Lovely to meet you @SalihahIshaq We hope you are enjoying the course so far and may even be interested in doing Step 3 afterwards :)
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Lovely @SamAtkinson Hopefully you'll be interested in applying for Step 3 :)
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Colin Royle replied to THOMAS AUGUR
Looking forward to seeing you on there @THOMASAUGUR :)
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Lovely :)
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Very articulately described
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Colin Royle replied to Emma Parkinson
Lovely to meet you @EmmaParkinson :)
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I think this is a genuine concern a lot of people have. Whilst government spending on healthcare is up, the ability to attract people to the various roles is certainly challenging.
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Completely agree @MaureenDoolan It is essential that we continue to work closely with community orgs to monitor the outcomes for people and also directly employee people from different communities into these different roles to ensure we reach and collaborate with marginalised communities.
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Thanks for your reflecions @MikeDixon Funnily enough I spoke to an MP a few years ago who had concerns about Personal Health Budgets. We discussed how in existing care, money already flows out of healthcare to private orgs such as care homes and care agencies. My dad's PHB meant that the money was spent directly on the care that he received rather than to a...
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Thanks for sharing this really good example @TmaraSenior
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Excellent :)
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Such a lovely example of Peer Leadership @NORMADIAHABDULGHANI People often find themselves becoming a 'go-to' for other people when they understand how the system works and to get a more personalised package of care.
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Thanks @EllaSprung We do have a maternity specific video story. I think we need to find the right home for it on the course but you're right, it would be very useful learning for people.
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Colin Royle replied to THOMAS AUGUR
Thank you for your lovely feedback @THOMASAUGUR I'm really pleased you've enjoyed it and hope you're considering applying for Step 3 :)
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Lovely to see you on here @EvaNabunya :) And what a lovely reflection as well. I completely agree - Peer Support can offer emotional and practical support, both of which are critical to the sustainability of our health & care system and reducing health inequalities.
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Very true @TmaraSenior As a health & care system, we do need to constantly do more to enable people to self-advocate and understand different options that are available to them. This can really help to prevent health inequalities as well.
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I'm so sorry to hear this was your experience @RonaTopaz I think often, as long as people feel as though they are heard and that their choices are discussed, they can reach shared outcomes together.
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What a brave reflection @AngelaSchatzberger Thank you for sharing. I do agree that this is why personalised care has such an important role to play in enabling people to feel better prepared to ask the right questions and how to access the right treatment and support options. You explain it so well :)
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Thanks for highlighting @MargaretB All sorted now :)
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Colin Royle made a comment
Completely agree about the need for culture change. It's a shame more wasn't discussed around modelling the shift in relationship between patients and system though by working alongside each other and modelling personalised care.
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Colin Royle made a comment
It's great that it talks about what we need for staff to feel empowered to make changes. The same is for patients as well when working with them - ensuring they are empowered to understand how the health & care system works, what changes are and aren't in scope.
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Colin Royle made a comment
I was a carer for my dad for a number of years and currently work as a lived experience representative with NHS England. It is great that the course has recognised the need to involve patients/people with lived experience in quality improvement and also the synergy with personalised care.
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Colin Royle made a comment
I like this approach. I think it's so crucial to have different stakeholders involved, particularly patients and those in receipt of care to understand the impact of our work and proposed changes.
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Hi @AvaM
Really fair concerns during a time of change. What I would say is that NHS England is changing due to the new Operating Framework - https://www.england.nhs.uk/wp-content/uploads/2022/10/B2068-NHS-England-Operating-Framework.pdfThis gives more autonomy to ICB's to make decisions and more funding directly to regions and it is because of this that...
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Colin Royle made a comment
Good to hear the importance of involving the patient in the conversation. It does feel important to include them in the room where possible as opposed to just consulting people, but both have a role.
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Feels v current with the new operating framework
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Colin Royle made a comment
I was a carer for my dad for a number of years and he was fortunate enough to become one of the first personal health budget (PHB) holders in 2009. Because of this, I really wanted to make sure that quality in the rollout of PHB's remained as they scaled.
We were part of a team that created 'key features' for PHB's which ensured that what was offered...
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Colin Royle made a comment
Hi everyone. I've been working in NHSE for a number of years and working in quality improvement through the lens of lived experience. We're currently going through a restructure so now feels a perfect opportunity to broaden my learning. Looking forward to it.
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It really is a powerful image isn't it. And I completely agree, thankfully much has changed and you provide brilliant examples. We're now approaching the NHS 75th birthday with a recognition that more and more needs to shift towards personalised care so that people can live the lives they deserve.
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Agree. I think in reality, personalised care isn't yet business as usual but when delivered well, can make a huge difference.
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That's really encouraging to hear @MichaelThorpe It's a good point that you highlight about where you live sometimes impacting the quality of care available
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Brilliantly put @AliceUnsworth
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Sounds like you have a really rounded perspective to bring. Hopefully you might be interested in progressing through to Step 3 and becoming a Peer Leader :)
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Such an important point @KeithHall Joined up care around the whole person is essential to treatment and living a good life
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So well articulated @ShaunEveringham
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Really pleased you've enjoyed it Shaun. Hopefully you might be interested in applying for Step 3?
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That's fantastic that you are interested in Step 3. We have a course beginning shortly so do email us and hopefully we can get you on it! :)
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This is a really good point @AndyHenshaw Often when developing policy and widening ideas for personalised care, our team looks at what has worked/hasn't worked in other countries and therefore what can be done differently or in addition here :)
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What a brilliant reflection @MichelleConway Criminal Justice is a big passion of mine since previously training to be a psychologist in this space. We did some work in 2019/2020 about giving people in prison settings a personalised care and support plan and also access to social prescribing upon release. It would be great if you're interested in progressing to...
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This is a lovely way of describing the importance of self-management education :)
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Lovely reflection @GillianParkin
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I agree @ShimalJose it really does. As our Director James Sanderson often says, doctors and medical professionals are experts in our treatment needs, and we are experts in ourselves. It's vital that we join that knowledge together to get the best possible outcomes
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What a brilliant reason for joining the course :)
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Ooh these sound like qualities of a Peer Leader @AngelaLennon I hope you enjoy Step Two and are interested in progressing to Step Three :)
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Would love to hear more about the Sunflower scheme? :)
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Really good understanding I'd say - it can be difficult but also people are under immense pressure :)
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That's a great reflection @DebraDulake In Step Two of the programme, we discuss more about sharing information with others and how to do that - hopefully it is something you are interested in progressing on to
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@PAULPRICE Completely agree Paul. Only by scaling up as we go along and learning from what works well and doesnt work well will get us to our end goal. We do need it immediately, sadly it's just slightly hit and miss but will become more commonplace over the next few years
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Fantastic. Maybe you're interested in applying for Step 3 and becoming a Peer Leader? We have a course that starts on 5th September :)
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Good to see you Peter. Glad you enjoyed the Kings Fund video
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Really glad you enjoyed it @RachelPetty Makes it much easier to understand doesnt it
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Would be great to hear more about this @DeniseMurtagh - we've supported quite a bit of work around menopause recently
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Completely agree @LucyHarding Sounds like you may want to be a Peer Leader? :)
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Colin Royle replied to Honey Attridge
Hi @HoneyAttridge We recently had a group of fantastic women go through our course with Perinatal Mental Health and work closely with their programme. Hopefully you're thinking of doing Step Two and applying for Step Three and getting involved? :)
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Colin Royle replied to Zenab Barry
@ZenabBarry Excellent. Really glad :)
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That's great @CarolCooper-Taylor We're doing a lot of work in this area at the moment so plenty of opportunities for our Peer Leaders to be involved
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Wonderfully put @Markmiller
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Colin Royle replied to David Stone
Sounds like what a Peer Leader does @DavidStone :)
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Colin Royle replied to Ali Earle
Insightful reflection @AliEarle
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Colin Royle replied to Zenab Barry
Hi @ZenabBarry Just to let you know - We will be running a Step Three course from Jan 31st if you might be interested in becoming a Peer Leader.
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Colin Royle replied to Sarah Wall
It's fantastic isn't it @SarahWall We will be running a Step Three course from Jan 31st if you might be interested in becoming a Peer Leader and sharing your own personal story?
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Colin Royle replied to David Stone
Really good advice @DavidStone
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Colin Royle replied to Zenab Barry
Agree with all of the above @ZenabBarry Brilliantly put
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Brilliant @RogerSmith , really glad you'll be using this to support others. Just to let you know, we have a Step 3 course starting on 31st January. Email england.pldp@nhs.net if you want to know more
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What fantastic experience @AnnNutt Sounds like you're in the right place :)
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Brilliantly put @RogerSmith
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Colin Royle replied to elaina ark
Thanks for sharing this with people @elainaark we really appreciate it. The pandemic has certainly brought its challenges, especially for disabled people and people who were asked to shield. Becoming a Peer Leader is a great way to influence and collaborate on some of the key decisions that are made, so hopefully will be something that interests them.
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Colin Royle replied to Amy BUTLER
Really pleased you're enjoying it @AmyBUTLER
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Colin Royle replied to Peter Trevanion
Really pleased you're enjoying it @PeterTrevanion
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Colin Royle replied to DUVIE DAFINONE
Excellent way of putting it @DUVIEDAFINONE and really pleased it is motivating you to learn more. Maybe even Step 3 will be of interest? :)
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Colin Royle replied to Darren Chamberlain
Really pleased to hear you're enjoying it @DarrenChamberlain
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What a lovely example of fantastic staff and the importance of seeing somebody as a person. Thanks for sharing this @JulieRoseMonteith
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Really glad you enjoyed Step 1 @ElenaL and hope you enjoy Step 2 just as much :)
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This is excellent @BrianJones Hope you find Step 2 just as interesting and who knows, may even be interested in applying for Step 3 at the end :)
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Really glad you enjoyed Step One @JohnConway and hope you find Step 2 just as useful :)
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Colin Royle replied to Aileen Chick
Lovely perspective @ElaineR. Does this mean you might also be interested in applying for Step 3?
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Colin Royle replied to Peter Trevanion
Thanks Peter. It's always interesting hearing how things work in other countries. It sounds reasonably similar to Direct Payments that we have where people are given choice and control over who provides their care :)
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Colin Royle replied to Katy McGunigle
Thanks Katy. I think you might really enjoy some of the face to face stuff we do on Step Three :)
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Colin Royle replied to Anthony Atherton
So sorry for your loss Anthony. Hope it was a good experience of care at end of life - it is so important to have that as we discovered
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Colin Royle replied to Aatish Shah
So pleased you have found the information helpful Aatish :)
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Colin Royle replied to Lindsey Stedman
Really pleased you've found it helpful Lindsey
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Colin Royle replied to Eileen Stonock
This is really positive Eileen :)
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Colin Royle replied to Peter Trevanion
Hi Peter. Hello from England :) It would be great to hear if personalised care is delivered in Australia?
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This is really well explained @DavidLillicrap and you're right, the culture change does need to be with people as well as in the system as well
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Colin Royle replied to Rodney Earp
That's brilliant @RodneyEarp really pleased you've enjoyed the course. Might Step 3 be something you're interested in applying for?
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Colin Royle replied to Lara Field
Sounds like a really positive way to support people :)
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Colin Royle replied to Lara Field
That's great @LaraField There is a link at the end of Step Two to register interest. Do let me know if you miss it :)
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Colin Royle replied to Lara Field
That's fantastic @LaraField I wonder if you might be interested in progressing to Step 3?
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Really pleased @elizabethlloyd-dehler
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What a lovely way of explaining it - 'compassionate distance' :)
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Colin Royle replied to Terri Jezeph
Hi @TerriJezeph There was definitely learning from what happened in social care. It's why as a coproduction group, we included in the key features for a personal health budget that somebody must have the three options available to hold and manage the budget so they could have support from a third party where needed
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Lovely reflection
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Brilliantly summarised @MikeBrooks
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What a fantastic example of sharing good quality information and the potential impact it can have
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Colin Royle replied to Terri Jezeph
This is fantastic to hear @TerriJezeph Really pleased you're learning lots. Might Step 3 be something you're interested in applying for?
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That's great to hear @RonnieCottrell So glad you're feeling confident to share some of the information that you've learned. Maybe you're interested in joining Step Three as well?
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Colin Royle replied to Mike Brooks
Good description Mike - retreating, not withdrawing
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I like this description @RodneyEarp We often describe this as a 'bottom up approach' led and driven by people themselves :)
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Colin Royle replied to Carmelo Di Maria
Fantastic examples of Supported Self Management @CarmeloDiMaria And as you say, many of these skills, qualities and behaviours are also needed in the role of a Peer Leader as well :)
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Colin Royle replied to Sarah Pritchard
Brilliant example @SarahPritchard These sound like the qualities of a Peer Leader. Maybe you're considering doing Step 3?
