Certificate of Achievement
has completed the following course:
This course outlined key genomics concepts and discussed international examples of public or patient involvement in genomics research, policy and healthcare. Learners had opportunities to identify and develop their advocacy skills and share their own ideas.
5 weeks, 3 hours per week
Dr Michelle Bishop
Associate Director, Scientific Training and Events
Wellcome Sanger Institute
Jillian Hastings Ward, MBE
Patient advocate
UK
Transcript
Learning outcomes
- Articulate the range of different ways in which patients and their representatives can contribute to genomics research and clinical practice
- Describe how patient advocates can influence key aspects of the research process throughout the research lifecycle and into genomics healthcare delivery
- Identify key communication and advocacy skills for representing patient and family interests in genomics across formal and informal settings
- Explore the factors that drive people to become patient advocates, recognising the emotional labour involved and the need for self-care, to make their advocacy sustainable over the longer term
- Examine different case studies of patient involvement and advocacy in genomics research and clinical practice around the world, and reflect on these to develop your own work where applicable
Syllabus
- Introduction to genomics: foundational genomics concepts and its role in medicine and research; ethical considerations
- Importance of PPIE (Public and patient involvement and engagement) in genomics research, policy and clinical practice
- Frameworks for engagement: locating personal engagement within broader community and systemic context
- Diverse ways individuals and groups can contribute, from sharing their data to shaping research priorities and advising research and medical professionals
- Practical skills for engagement: communication, co-creation and advocacy skills to support effective participation
- Case studies illustrating different levels, approaches and skills for participation
- Developing an advocacy plan, peer review exercise
Issued on 8th July 2026
The person named on this certificate has completed the activities in the transcript above. For more information about Certificates of Achievement and the effort required to become eligible, visit futurelearn.com/proof-of-learning/certificate-of-achievement.
This certificate represents proof of learning. It is not a formal qualification, degree, or part of a degree.
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