Skip to 0 minutes and 6 seconds Navigating the ethical and regulatory frameworks of health data can be crucial and complex in rare disease research. Whether you’re a PhD student, a healthcare professional, a researcher, a biotech developer, a rare disease patient or a patient representative, our latest MOOC provides the tools and insights you need to understand the world of health data and make a significant impact. Introducing “Health Data Ethics & Regulatory Frameworks in Rare Disease Research,” an extensive online course by the European Joint Programme on Rare Diseases. Dive deep into the ethical and legal nuances of health data use, explore the intricacies of data types and sources, and master the FAIR data principles in the context of rare disease research.
Skip to 0 minutes and 54 seconds 4 weeks of courses 12 hours of content 22 videos 18 international experts Plus exercises, quizzes and activities. Are you ready to learn more about the ethical dimensions of health data and the application of regulatory frameworks in rare disease research? Are you ready to contribute to the progress of research for patients suffering from rare diseases? We’re counting on you.