We have already highlighted in previous steps of this MOOC how patient involvement can boost translational research at different levels. In the following video, we can listen to the testimony …
Rare diseases (RD) are conditions that have been historically neglected, because of both their complexity and the rarity of their clinical presentations. There are barriers to establishing a timely diagnosis …
The role of people living with a rare disease is fundamental in promoting preclinical and clinical research for rare diseases and this is also true for drug repurposing. Rick Thompson …
What’s the role of patients in preclinical research? Patients are not only research subjects and can play a pro-active role in translating research results into health improvements. Let’s hear about …