Nicholas Embleton

Nicholas Embleton

Professor of Neonatal Medicine with >25 years experience in large NICU. Lead research programmes in neonatal nutrition & work with parents
www.neonatalresearch.net
www.neonatalbutterflyproject.org

Location Newcastle upon Tyne, UK

Activity

  • thanks for joining - of course, this is an emotional and sad topic, but very important, and I hope it will be helpful for you

  • thanks for joining - you work sounds fascinating. feel free to contact me if I can help with your projects. just email me

  • pleased you have enjoyed it

  • thanks for joining

  • I'm pleased it's been helpful - enjoy the next week

  • thanks for joining - we share the feedback with parents - it means a lot to them. Great if you can persuade some colleagues to join the course

  • thanks for joining; I hope it's interesting. Of course Baby Loss is a sad and emotional subject, so take breaks where needed. But it is an important part of understanding for all midwives. Good luck!

  • thanks for joining

  • thanks for joining - hope you find it useful and you can encourage others in your team to join the course as well

  • thanks for joining - great if you can encourage others to take the course

  • thanks for joining

  • thanks for joining - please share with colleagues

  • thanks for joining

  • thank for joining. Yes, this could be tough for you, so take time out and breaks. The videos and stories can be especially triggering for some so take care. and please share your insights that others (including me) can learn from. all the best

  • thanks for joining

  • I agree

  • I agree. social workers and others have such an important role in providing the broader view of life outside the hospital

  • thanks for joining

  • thanks for doing the course; please share with colleagues and others who might be interested

  • thanks for joining

  • thanks for joining

  • thanks for joining

  • thanks @MeritaClowes Health care staff as well as parents are individuals and we have to be 'ourselves' to some extent. Getting the balance between expressing emotion and being natural which can help parents/patients, whilst seeking not to over-burden them with our sadness is key. This feels much more challenging with baby loss compared to death in adulthood -...

  • thanks Merly for sharing your story

  • take your time. It is difficult to hear the experiences and read the stories without feeling moved or upset

  • thanks Helen for those insights. I agree terminology can be problematic. I think you are right, maybe we use miscarriage because it feels less alarming than stillbirth, and therefore use of that term might undermine/downplay the significance. The terms are so ingrained in society. I'd love to know what terms/words they use in other countries and cultures....

  • thanks for joining

  • thanks for joining

  • thanks for joining

  • thanks for joining ; please share with colleagues

  • thanks for joining - I'm sure others will be keen to hear your insights and experiences

  • thanks for joining; pleased it was helpful. Please share with colleagues and encourage them to enrol. We pass on your comments to all the parents who were part of our research and films.

  • thanks for joining; take your time - it can be emotional

  • thanks; please share with colleagues and others

  • Sure - please encourage others in your department to join the course as well

  • the families who helped with our research and films were amazing!

  • the different cultural aspects are important. in some maternity units they have placed a butterfly sticker on the hand held notes

  • I agree; personalising letters are really important

  • I think many health professionals underestimate how small interactions and behaviours can have such a positive impact during these difficult times

  • thanks for joining

  • thanks for joining, I hope you find week 2 useful as well

  • thanks for joining

  • thanks for joining @LeoGurney and for sharing your views and insights

  • I agree

  • thanks. If you work in UK then Skye High Foundation can send out resource packs to your hospital. If you work elsewhere, then DM me and I will explain how you can help set your own hospital/workplace up.

  • thanks @MichelleWeeks that sounds like great idea. We explored something I think was called 'scrap booking' which is similar but parent might put in polaroid photos, or wrist bands, or scraps of paper or cards etc. A place for those thoughts and memories but without a specific 'structure'.
    It won't suit everybody but it sounds like it works for some

  • thanks for joining

  • thanks for joining and all your helpful comments; also to acknowledge how challenging this course was for you and many others - thank you for sticking with it. We'd be delighted if you can encourage others to enrol and join in. While the course is focused on co-twin loss I'm sure you'll agree there are many learning points relevant to several other situations...

  • thanks for joining @JaneySutton I hope you find the course rewarding and can share with colleagues

  • thanks for joining

  • thanks for joining, and for telling colleagues. I will share your kind words with the parents

  • thanks for that - I hope you find the course useful, and look forward to your observations and insights

  • thanks for joining - please share with your peers. We look forward to hearing from your insights

  • thanks for joining @EVERLYNEGICOVI . Really good to get the perspectives & insights from a wide group. Please tell your friends, teachers and peers

  • @SallyHolloway thanks. Can you send me a DM to my email Nicholas.embleton@ncl.ac.uk with contact details. thanks

  • I agree; there could be many similar courses that could be developed. Thanks for joining @SallyHolloway it would be great if you could share this with other sonographers. Do you have an sonography association I could link with who might be interested in disseminating the course, and might be interested in endorsing? thanks

  • thanks for joining @HilarySoobhany - great to have your insights as a HV

  • @KathySmith agree; met many mothers who worried they'd eaten the wrong food, or had a drink, or should have rested more. So many things to consider

  • thanks Kathy - there are longer film clips on the Butterfly website www.neonatalbutterflyproject.org themed into different areas; but that website isn't sadly organised for visually impaired learners.

  • It must be so hard for you and others in your position. Personally, I think 'shedding a tear' in front of parents is OK; but at same time, professionals should not appear distraught because that might place an additional burden the parents.

  • thanks for the positive feedback; means a lot to us, but especially to the parents. Please share with colleagues!

  • Yes, I can see the challenges of being a sonographer and being the 'first' person to diagnose specific complications. Must be pretty challenging. Hope the course is useful - it would be great if you could share with other sonography colleagues both in your hospital, but also more widely

  • Thanks Sally. So important to recognise that we are all different and not to 'downplay' a loss that we might [as an individual] approach differently. We never know what's going on in someone else's head unless we give them opportunities to talk and we listen. I've a friend who had ART and 2 embryos placed, only one of which continued and she felt that she had...

  • thanks for joining

  • I agree that many of these terms are 'loaded' and we are all appalled about the continued use of the term 'SA' and many others such as 'termination'. It would be great if the medical community could work with parents to find terms that are less offensive or upsetting. Generally I try to use the term "Baby Loss" because as you say from 6 weeks to term, many...

  • We're sorry for your loss, and that you had such a challenging experience, and thank you for sharing your story. It means a lot and I'm sure other learners will benefit from hearing your insights. Look after yourself and do the course in your own time. It will be painful in places to think about things. But thank you for joining and contributing.

  • great! thanks for joining

  • The course will make many people feel emotional or sad. It would be difficult to discuss these areas without acknowledging we are all human, and can be deeply moved. Take the course bit by bit if you want. Share your learning with others in the conversations, or chat with friends. Hope you find it interesting

  • thanks for joining @KathySmith You are right that the lifelong impacts of baby loss aren't widely acknowledged or appreciated, yet they have profound impacts on how families interact with primary care for the rest of their lives. Would be great to get your insights as you do the course, and hopefully you will find it useful and can share with GP networks and...