Marian Krawczyk

Marian Krawczyk

I am a Lord Kelvin Adam Smith Fellow with the End of Life Studies Group at the University of Glasgow. I am a medical anthropologist who is interested in interdisciplinary research on the end of life.

Activity

  • In the fabulous example you present @AlexandraP physical death preceeds social death, as it does in many other cultures.

  • An excellent and detail response @ClareLawrance. If you had to answer your own question, what is your opinion?

  • I have honestly never come across the word 'dier' before!

  • To play devil's advocate @LaurèlH - can someone have a good death with good care and autonomy without ever having to accept that they are dying?

  • @LaurèlH - that's really powerful. Such insights never leave.

  • This is unfortuantely a very apt description of what happens in many care homes in the global North. Given the number of people who die in care homes, it is important that all forms of death be something people are able to meaningfully engage with, which is not the current situation. However since this is true in most care settings, it doesn't seem set to...

  • Interesting. Arguably this could be framed as a form of voluntary or imposed withdrawl - an aspect of social death perhaps in our contemporary world.

  • Really interesting @ClareLawrance to hear about your experiences using trajectories.

  • I'm glad you had a chance to read the Lancet Report and really interesting to hear about your experiences regarding cultural variability in determining death.

  • @MatthewGoodwinBruce - You are highlighting important cultural responses to ageing and dying. One argument that can be made for global North cultures is that these processes are increasingly seen as pathological, without meaning or value, and therefore need to be truncated as much as possible.

  • That is an enormous amount of caregiving @HeatherWills.

  • I don't think your last comment is off-topic at all @BushraGhafoor - it highlights how the end of life fundamentally affects the totality of a person's social network.

  • A significant insight @PaulaSholade - that the end of life can create significant socioeconomic changes to a person's world; it is not just a physical process internal to the individual.

  • @FaridaMajiyagbe - I feel your frustation, even though you have provided a solid definition. One of the most engaging aspects of this topic is how it continues to evade certain forms of 'knowing'.

  • @ToriO - Your multiple definitions of dying very nicely highlights the mutibility of the concept.

  • To play devil's advocate @MatthewGoodwinBruce - if, for example, a person's brain isn't fully developed until they are in their 20s, could you still argue that deat hstarts from the day of birth?

  • That's an interesting definition @LeeA - it sounds like you have a health and social care background?

  • @SteffiWilson - This is a very thoughtful response. You eloquently highlight the key points that are coming up!

  • What move or character would you choose @ReynaldoCaceres ?

  • @AnnaHayes - Here in the UK we definitely see much more media coverage regarding health care since the start of the pandemic.

  • Yes, @BerniceChukwumba - the sociobiological impacts has not just been due to getting COVID-19!

  • @MatthewGoodwinBruce - Do you think the pandemic has raised awareness about death? Could it also be argued that it has resulted in even more focus on technological/biomedical interventions?

  • Well @CharlotteD - you might be our youngest participant to date! I'm curious to hear about your interested in palliative care, and your thoughts as you move through the course materials.

  • Hello Eddie, and welcome. Please share your work experiences with us as you move through the course, and I'm so pleased that you're wanting to deepen your own understanding of dying, death, and bereavement.

  • Hello Matthew - You do valuable and hard work, and I imagine many of the people you work with are nearing the end of life. Glad to see you here.

  • Hello and welcome @SteffiWilson - Do let us know what you think of the material in relation to your work!

  • Hi Irene - Welcome! While we are not moderating the chats daily I hope you'll still find this course useful and engaging.

  • @AileenPalmer you are most welcome - engaging with everyone through this course is one the favourite parts of my job.

  • If you'd like to chat further about this, you know where to find us!

  • @LaurèlH - that's an ambitious path! I hope you find the materials relevant and engaging.

  • I enjoyed your thoughtful comments @ClareLawrance - enjoy Week 3!

  • We are now at the end of Week 2.

    We've covered a lot of ground in these two weeks, and I very much enjoyed having a chance to read through your comments and to engage in conversation with some of you.

    I now turn you over to the excellent hands of my colleague Dr Naomi Richards, who will accompany you through Week 3.

  • @JoanOlokomeOtaru - Would you be interested in sharing/discussing that dread with strangers who might also feel the same way, or maybe have other views you might find reassuring, informally over cake and tea? Or is this not for you?

  • Let us know about your experience if you check back here @MollyClery

  • A very articulate response @EdwinaMcEachran.

  • @JoanOlokomeOtaru - There's some interesting research with people who attend which finds that the majority of people only go once or a few times and they do not report any increase of fear, depression, or anxiety. Often the opposite, reporting feeling more connected to others and invgorated for being able to share their thoughts and perspectives.

  • @ClareLawrance I hope you make it to one as there's quite a few happening worldwide, and the website will help you find one.

  • Many commenters here see the value of the role but not the name. While there are some potentially clear benefits to a name change, what might be some of the drawbacks? @MollyClery @SusanCornish @RachaelEnkel

  • A really interesting comparison @ChescaB about the normative power of 'natural' in the two different contexts of birthing and dying.

  • That's an excellent questions @JoanneMutjavikua. There are different possible pathways between community-based and professional-based care. What would you like to see the relationship between the two as?

  • @JoanneMutjavikua - glad you found it useful!

  • @GillianWilson - You've identified many of the key tensions of trying to develop compassionate community initiatives in the UK (and the Global North as a whole).

  • A great example @CarolaSalazarNorambuena.

  • @ClareLawrance - You are highlighting the importance of time, and the requirement of (not always organized) time in order to develop relationships.

  • @RachealEnkel - You may find the following useful as it links to a range of different tools and resources for people and communitites interested in developing their own practices and programs. https://eapcnet.wordpress.com/2020/05/14/building-compassionate-communities-a-new-resource/

  • If you have a moment feel free to link any resources or media about this initiative.

  • This is a great example @RachealEnkel - thanks for sharing!

  • @ClareLawrance - equity and inclusion issues at the end of life are very important indeed!

  • @RachealEnkel - what small gestures can you think of that individuals might be able to do?

  • Involving community members is absolutely key to any kind of planning!

  • @SusanCornish - Yes, the role of geography remains key in these concerns.

  • You bring up an important point here @MelinaE - the 'siloing' within healthcare systems and the lack of continuity of care across settings.

  • You provide a good 'starter' blueprint for action @YabinLu - who do you think would be best placed within the community to begin mapping the community need for palliative care?

  • @CarolaSalazarNorambuena - that's a very interesting framing of Dr Kumar's talk.

  • Those are some excellent ideas @IsabellaC .

  • I believe it was recorded in 2018.

  • You raise some key issues @ChescaB - the medicalization of every day care and the rise of autonomy as an unquestioned moral good in the Global North both have serious consequences.

  • @JoanOlokomeOtaru - This is an extremely important point you bring up; in particular what is now known as the 'Kerala Model'. https://en.wikipedia.org/wiki/Kerala_model

  • That's an admirable goal @YamCaplan. There are many examples of compassionate community intitatives in different parts of the world - I hope this is just the beginning of your exploration!

  • @RonaldValentine - you may find the following example interesting: https://compassionateneighbours.org/

  • Hi @TrishD - You are right about the challenge in trying to answer the question and scholars have been debating this for a long time. You've identified many important levels of community!

  • Excellent point - that the concept of community is context-specific.

  • You bring up an important distinction that is sometimes discussed unreflexively framed as a 'polarity' in care - community versus hospital.

  • You rightfully highlight the importance 'social capital' - the idea that community requires a sharing - of identity, norms, values, and trust, as well as the requirement of 'linchpin' people who connect through both horizontal and vertical relationships.

  • @RonaldValentine does your hospice participate in any compassionate community initiatives?

  • I've notified FL @SusanCornish - I'll let you know once fixed.

  • A very thoughtful (and thorough) response.

  • Hello @MoiraHill - I will be very curious to see your thoughts of the material given the diversity of your experience and expertise. Welcome!

  • Welcome @AlexandraP - I hope you find this course useful to your goals!