Case study: data governance at The Australian National Centre for Indigenous Genomics (NCIG)

The Australian National Centre for Indigenous Genomics (NCIG) has a large collection of blood samples and associated health information, collected from Indigenous communities in Australia between the 1960s and 1990s.

Ethical standards around the collection and use of this data have shifted significantly over time. It is now recognised that it’s essential for such data to be treated in culturally appropriate ways, led by the views of the Indigenous communities themselves.

This video from Azure Hermes, Deputy Director of NCIG, explains how Indigenous governance became embedded at NCIG, and how is it upheld.

Reflection

What did you learn from this case study? What are the essential ingredients for success in embedding indigenous governance at NCIG?