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paul charlton
Children scattered including backwards and forwards to home ..working till recently in the learning disability community...Patient research champion with the UK National Institute of Health Research
Location living in Felixstowe on The English east coast
Activity
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Hi Margaret..last year the Care Quality Commission, the health care regulator in England, introduced Involvement In Research as an indictator of good health care for inspection purposes...this was an excellent step!
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Hi Daniel...Research participation in the UK continues to rise year on year reaching over 1 million for the first time 2018-2019...this year, six months after the first studies opened for recruitment, 200,000 participants from across the UK had taken part in NIHR-supported urgent public health research into Covid-19!
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paul charlton made a comment
Perhaps we should leave Buddhism out of the conversation in order to focus on addressing the actual individual level situation we find ourselves in more effectively and responsibly. Else we enter discourse such as Bhuddism’s relationship to Muslim Rohinga genocide in Myanmar as profoundly disturbing ...religion intersecting with nationalism and basest...
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paul charlton made a comment
Sitting upstairs whilst my son teaches guitar in the front room...contented conversation and guitar chords wafting up to me....walked out and bought some croissants earlier for a breakfast that never happened ....photocopied a short story so I can keep reading it after the book goes back to the library....side-stepped the day to begin this course....
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paul charlton made a comment
Hi..my name is Paul ..I live in the UK.....the course a purpose of sorts....”That’s what happens when you can no longer do the thing you know best how to do,” he went on.”That’s what I was thinking: then you die.” (Samanta Schweblin: Mouthful of Birds)
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Hi Kathryn...NIHR Evidence is a UK National Institute of Health Research website which avows its purpose as "Making health and care research findings informative, accessible, relevant and ready for use for all" https://evidence.nihr.ac.uk/
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Hi J I....you may find interest at the World Health Organisation covid-19 research page where collaboration and sharing of study findings from around the world is facilitated https://www.who.int/emergencies/diseases/novel-coronavirus-2019/global-research-on-novel-coronavirus-2019-ncov
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Hi Daphne..nutritional approaches to the prevention and treatment of mental disorders is perhaps a contemporary area of research where translation into practice meets established barriers....see the International Society for Nutritional Psychiatry Research... http://www.isnpr.org/
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paul charlton replied to Emma Searle
see this link Emma - a note on research involving adults who lack capacity to consent://www.rdforum.nhs.uk/content/wp-content/uploads/formidable/15/Background-reading-for-tweetchat_research-involving-ALC-2.pdf
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Hi Naveen...also having the public involved in the design of studies from the start - from an ethical point of view - is crucial for safe research today, especially with urgent COVID-19 health care obliging research to happen at speed...so far, 6000 members of the public have given their details to the UK national research ethics approval body, The Health...
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Helen Clarke's podcast (up above) powerfully expresses this partnership..
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Hi Anthony ..Understanding Patient Data is a great website for informing and considering data ...using accessible language
and to make the way patient data is used more trustworthy
https://understandingpatientdata.org.uk -
Hi Emma...you may want to look at the study website participant information faq and see how useful/reassuring or not you find it in regards to risk advice ...https://www.birmingham.ac.uk/research/bctu/trials/womens/C-Stich/participants/faqs.aspx
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Ethically an RCT should only be undertaken if clinicians are truly unsure which of the interventions being compared is more likely to benefit patients...a review of publicly funded RCTs in the UK found that the new treatment had superior results (whether significant or not) in 61% of the...
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hi Rebecca...and sometimes the cycle is interrupted because the data is showing no effect...as with the WHO Solidarity trial data and the results from the UK's Recovery trial both showing that hydroxychloroquine did not result in the reduction of mortality of hospitalised COVID-19 patients, when compared with the usual standard of...
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paul charlton replied to Siobhan L
Hi Siobhan...point well made re the whole organisation being health research aware and research involved...a cultural lift throughout a health care system...
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paul charlton replied to Kathryn Styles
Hi Kathryn...this link https://www.nihr.ac.uk/blog/covid19researchvoices-the-multi-fold-benefits-of-integrating-research-in-standard-care/25145
is to a blog just a week ago from Dr Jay Naisbitt, a Consultant in Intensive Care medicine about integrating research into routine practice so supporting patient recruitment into urgent COVID-19 public health studies... -
Hi Katie...Wendy said to look at the Join Dementia Research website...https://www.joindementiaresearch.nihr.ac.uk There it says 'Volunteers of all ages are needed, from all ethnic backgrounds and cultures. Anybody over the age of 18 years old can sign up. We also encourage carers, relatives and the families of people with dementia to register.' The chance is...
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paul charlton replied to Mary Peel
good to see another research champion on the course Mary!
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paul charlton made a comment
Hi
Im a patient advocate for the use of health data in research and am keen to see how successfully your course explains and gets round the discussion -
paul charlton replied to Natasha T.H.
Disappointed Natasha as the review wasn’t saved ...sorry to say ....I responded to your poem on Saturday night ...it was the second poem I responded to that I saved as I was uncertain about what had happened to yours...,I can say that your poem took me on a very impressionistic journey through the expression of the selective mute...I understood and experienced...
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paul charlton replied to Natasha T.H.
Hi Natasha....I enjoyed your poem a lot...powerful impressionistic language.....unfortunately my review got lost in the sending as I put it in one box and didn’t put text in the other two...I think I saved it on my home pc though so when I get back home I can post it in this trail..if that’s ok...
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paul charlton made a comment
Thanks to Juliana Alejandra for her happy approval of the personal in my Fathers Day poem!
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paul charlton made a comment
Father's Day Blues
Father's Day Roses
Father's Day ListeningThe poem is drafted with affirmation in mind....the title I have used is 'FD Roses' as a challenge to 'the blues' driving the poem inwards and so not outwards...different titles alone would have taken me to three very different reflections..
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paul charlton made a comment
I enjoy a poem - and what makes me enjoy a poem is its rhyme - constructed to bring coherence to my enjoyment - so enjoyment ...rhyme has no norm ....except in its absence there isn't a poem to enjoy..
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paul charlton made a comment
This was a three minute exercise...achieving less of rhythm than ideas of a kind - to work on and find a rhyme
Tools
Tools belong to other people
Their hands make shapes and cities to sit withinMy hands hold children, and ironing boards
And together we mend daysTools are made of iron
Mines are made of skin, of a mind’s breathWords appear...
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paul charlton made a comment
Thank you Helen...that was felt...
I read the first verse or two ..tripped as I stopped at the end of each of the short verses - so went back and re-read letting the lines catch up with the next - and enjoyed the intensity of each experience held within each verse - reinforcing itself as it led to the end......then I read the prose poem as if with my eyes... -
paul charlton made a comment
The course intent has been in part to just try to test the mechanics of makin...which is good.. and let the words play....the word 'yoghurt' from the list always reminds me of a first ever festival - so squeezed in all the words - bar 'spoon' into the verse - maybe to come back and make more of it..for now its ok having spent some time workin it away..
Isle...
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paul charlton made a comment
A brass feather dated 1681
Masquerading as a tailors well worn tool
Not for trousers surely
For something finer
A silk blouse, maybe too delicate
A cotton garment for the poorMarkings intrigue, punched
Numerically described
Perhaps not for the tailor
Who else besides? -
paul charlton replied to paul charlton
Thanks erkut.....lovely comment...the narrative is remembrance and fulfilment ..in a few weeks time its thirty years since we wed but also 20 years since she died .....sadly......not seeing her children grow into their lives....the found poem struck a chord ...
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paul charlton made a comment
I joined the course as there are quite a few significant events in the next weeks - and I thought I would maybe look to write about them ...motivated to the possible with the discipline of the course support and its demands ....and with everyone's contributions scribbling alongside.....it's been good ...thank you!
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Super bus rhythm! I rode on the bus out that way myself once ; your poem brought so much of that back!
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paul charlton made a comment
'Thirty Years Later'
'Thirty Years Later' is a Pittsburgh Original Rock Band
He plays guitar in a London Original Rock Band: Oscar our son'Thirty Years Later' I Meet Your Seventeen-Year-Old Daughter the Poet
She meets your first grandchild, due in 20 weeks’ time: Hannah our daughter'Thirty Years Later' . . .: Catching Up with the Marcos-Era...
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paul charlton made a comment
I cling to expectation, until Invisible, (1)
our ghosts starve, while the rest of the world keeps on eating. (2)(1) A Plagued Journey BY MAYA ANGELOU
(2) Missing More Than a Word BY TANAYA WINDERMaya Angelou describes the overwhelming weight of darkness suffocating a woman’s...
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paul charlton made a comment
must be 2-3 hours since I went off looking...and kept reading and listening...and recording a poem - first time to send - on the ipad...decided to listen to spoken word poets ending with this: Hip-Hop & Shakespeare? Akala at TEDxAldeburgh
https://www.youtube.com/watch?v=DSbtkLA3GrY -
paul charlton replied to Angela Scheidegger
Remember was my word too...... a word comes .. .. ..what is it we remember...memory is elusive and needs a poem....how do we feel what we remember...n thanks for the Christina Rosetti..
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paul charlton replied to Julie Spencer
I agree...I get understanding that I respond to one poem and maybe less so to another..its for me always the constant shock of another poem ...another voice......I can't put any ahead of any other...listening to a poet on the radio recently she said - about her complicated poetry - dont worry if you cant understand the poem just allow yourself to listen to...
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paul charlton made a comment
immediately raises the question as to whether research is equitably distributed: given that it affects all of us, who amongst us does not have the benefits of research: children, rare disease, prevention as opposed to treatments....?
