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Skip to 0 minutes and 8 seconds Traditionally, patient advocates have been very active supporting to individualize so that patients and caregivers are also advocating with politicians and healthcare professionals to improve living conditions of people living with a disease. And in recent years, other areas, other working areas have emerged for patients advocates. Like, for example, digital health, health Technology Assessment or clinical research is a bit, maybe areas, now patients advocates are starting to get involved.

Skip to 0 minutes and 44 seconds But there are some challenges that we have to face: first, the education and training is… we need to be more prepared we need to be more trained to develop our work in an effective way… or can to provide a patients inside in a responsible way to where the difference less… effectively Also we need to deal with a certain type of mistrust of the scientific community or scientific community about the patient involvement in all this process. So we need to convince them about the value of the patient involvement in health processes.

Skip to 1 minute and 24 seconds And also, finally, it is necessary to implement evaluation proceeds in order to know better the potential valuable info about the patient involvement and also to define and decide methodologies and protocols to get better patient participation in social and in technology assessment, clinical research of digital health. What I want to say, it is really important that the patient must be in the middle all the stakeholders must be focused on patient needs and try to give solutions but we also should work with patients, not only for patients, we need to work with patients.

Skip to 2 minutes and 8 seconds and it’s important to empower them to be more active and to promote them to help and to promote them to be more actively in the health, in the health care. In conclusion, what I will say is that if you are doing something for patient you have to do it with patients because we have the potential to be a great stakeholder in healthcare and we need to convince and we need to work with different stakeholders to do it in a properly way. So, let’s continue networking and advocating for patients

Patient involvement makes a better healthcare-technology ecosystem

There are several areas where patients could help in the development of healthcare technologies, such as:

  • Digitizing health
  • Improving living conditions
  • Health technology assessment
  • Clinical research

In this video, Diego would like to briefly introduce the concept.

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This video is from the free online course:

Digital Health for Cancer Management: Smart Health Technologies in Complex Diseases

Taipei Medical University