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Experiences of research participants


In this step you will hear from Mila Mendonça and Joana Passos, two mothers of children with Congenital Zika Syndrome in Brazil. They talk about their experiences being part of research studies during the peak of the Zika epidemic in the country.

After you have watched the video, consider the following questions and share your responses in the comments section below:

  • What were some of the themes that the mother’s raised in sharing their experiences of the research in to Zika?

  • Considering what you have learnt across the course, what could be done to improve the experiences of research participants? Think particularly about participatory methods, and inclusion of people with lived experiences in research.

Video supplied by ITN via Getty Images

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Global Disability: Research and Evidence

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