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Colin’s story: diagnosis

Watch Prof Robert Howard and Dr Jon Schott describe the main features of DLB and the process of diagnosis. We also hear from Colin and Gill about their journey to …

What is DLB?

Watch Professor Jon Schott and Professor Robert Howard describe the main features of dementia with Lewy bodies. DLB is the second most common cause of dementia in elderly people Features …

How to Treat Dementia with Lewy Bodies (DLB)

In this article, Dr Rimona Weil explains the many different options for treating symptoms in people with dementia with Lewy bodies. In DLB, treatment requires particular care as some treatments …

Parkinsonism

Watch Professor Rob Howard discuss the relationship between Parkinson’s disease and DLB, and the different diagnoses that exist. Gillian, Colin and Dr Jon Schott also describe Colin’s symptoms and how …

Hallucinations and delusions

Watch Professor Rob Howard describe: how common hallucinations and delusions are in DLB the negative effect they can have on patients why visual hallucinations are particularly common in DLB the …

Fluctuations in DLB

Watch Professors Gill Livingston and Rob Howard discuss fluctuations specific to DLB and how it can impact on the family. We also hear from Colin’s wife, Gillian, and his daughter, …

Inherited forms of frontotemporal dementia

Frontotemporal dementia covers a number of different syndromes. This article takes a wider look at frontotemporal dementia (which can affect behaviour, language skills and movement) and explains the genetic basis …

Living with progressive nonfluent aphasia

Jane describes her experience of living with a diagnosis of an atypical form of progressive nonfluent aphasia. There are a number of very straightforward things that Jane explains, that people …

Living with logopenic aphasia

In this video (~10 minutes) Jenny who has a diagnosis of logopenic aphasia describes how the condition affects her. We have also prepared a 3 minute version for those short …

Hosna’s story: the FTD support group

Shaheen describes the support she received through the FTD support group. If you’re affected by dementia yourself or care for someone with dementia, what kind of support do you need, …

Special Feature: Rare Dementia Support groups

Jill Walton describes the work of Rare Dementia Support which provides information and organises meetings for people with six less common dementia diagnoses, including frontotemporal dementia. What are your thoughts …

Living with bvFTD: the challenges explained

After watching the video where Jill Walton explains some of the challenges of living with bvFTD, think about the following question, and share your thoughts in the comments section. Social …